Click Here to Read Brady's Story
Saturday, March 29, 2008
Brady is still doing really well,but had a tough night last night. He went to sleep around 12am but was back up at 3am and ready to play. We fought with him for about 4hrs before we finally got him back to sleep. He only slept a couple more hours and has been going strong since. He has been in a happy mood today,but also very destructive. We were trying to get some things done around here,so we sent him up to Maw maws house for about an hour. She brought him back home saying that she just couldnt keep his clothes on,he thought that he should run around naked the entire time. He has been borderline manic all day,she just got to the point she couldnt handle him. He has been extremely head strong today,more so than usual. He has been in one of his moods,that he wanted things done,when he wanted them,and exactly how he wanted them and would do whatever it took to make this happen. I know that some of this is just typical 5yr old behavior,we tend to forget that at times.
He did do something that I was very proud of though. We walked back up to Maw maws house this afternoon,and Brady just started pitching a fit,going to the kitchen. I kept bringing him back out,but he was determined that there was something that he wanted in there. I finally got him a bag of popcorn on the counter,but he wouldnt have that,he went back in there and continued fussing. So finally I said Brady what do you want,duhhh,all I had to do was ask,lol. He grabbed a paper plate off the counter and trotted to the living room,giving it to Maw maw. See she always has lots of veggies cooked,things he really loves,and that was what he was wanting all the time!! We fixed him some homeade veggie soup and green beans,he was just thrilled. Whoo hoo,a kid that doesnt want junk food,but wants veggies,lol. Anyways I was just thrilled that he was able to make his point so clearly to us,he knew very well what he wanted. I swear we parents can be such dumbheads,as my 9yr old says,lol. Just goes to show,we have to learn to listen better.
Anyways,Brady is sleeping now,hopefully for the night. I do hope that he will be a little calmer tomrrow. I know his manic behaviors today,were just because he was so tired,he gets that way when he doesnt sleep.Im going to take some pictures tomorrow,so check back tomorrow night for more pictures and maybe even some video. Hope everyone has a great night. :)

posted by angelwings @ 10:24 PM
   0 comments
Monday, March 24, 2008
Well,just wanted to let you guys know that Brady continues to do great!! He just seems to be thriving these days,though still very active,lol. He and I went on a little shopping venture last week,it was very interesting to say the least,lol. I had no stroller or cart to put him in,and he was just thrilled about this. I fished him out of the mens dressing room several times. He rearranged all the folded clothes on the shelves and had to entertain everyone that got within 20 ft of him. I'm normally a very thrifty shopper,I love a bargain,but I didn't even have time to check out prices,for chasing him around the store. He would run off,so I would stop looking to go and get him,he would then go totally limp and sit down in the floor,refusing the go with me. We finally got up to the check out,in the shoe dpt,where he rearranged all the shoes,Im sure the workers were so appreciative of all his help,lol. So while were standing in line,I turned around to see him digging through a womans purse in line,and she was letting him,all the while smiling and talking to him,she didn't seem to mind at all,lol. I dragged him out of her purse and put him in a leg lock while I wrote my check,he wasn't to happy about it,but at least it kept him still for 5 seconds,lol. Yeah,I know it sounds like a nightmare,but Im so thankful that he is capable of running around the store,that he is so happy and so sociable. He really can be such a handful,but he is so much fun. He has such an amazing little spirit,one that could make even the most bitter person smile and maybe even laugh a little. Im just so thrilled to see my little man walking,or running should I say,it has been such a long time waiting for this day to come. Brady has accomplished so much,despite all that he has been through,he is such an inspiration. He is a tough little cookie!!
Anyways, he has almost totally recovered from his surgery now. He doesn't have to wear his no no's anymore,he doesn't mess with his stitches,except for an occasional scratch. We havent seen any seizures as of yet,and he is still sleeping through the night. I still don't know what to do with myself these days,it feels so strange to actually get to go to bed. I'm finally getting to try out our new bed,whooo hoooo!!
Well we go back to the doc on April 3rd,just for a checkup,but I will keep you guys posted on how it goes. Thank you all so,so much for your support,thoughts and prayers these days,it means so much to our family. Thank you Clint,for donating to Brady's fundraising efforts for the Angelman Organization,we all appreciate it very much. Hope all of you are doing well. Brady sends big hugs and sloppy kisses to everyone.

posted by angelwings @ 9:04 PM
   0 comments
Sunday, March 23, 2008
Just wanted to post this article,about Brady, that was written in our local newspaper. It reads as follows:
Neighbors




Rare disease hasn't crushed boy's spirit

By Stephanie Nelson
Friday, March 21, 2008 11:38 PM CDT



Brady Fore has come a long way since Star-News readers first were introduced to the Andalusia resident and his family in 2005.

Diagnosed at 2 with Angelman Syndrome, the then-3-year-old was a pro at keeping his family both entertained and sleep-deprived since the syndrome from which Fore suffers manifests itself in symptoms such as frequent laughter, hands flapping, developmental delays and more importantly - seizures.

"When our son, Brady, was born, it was the second greatest day of our lives, the first being when my oldest son, Peyton, was born," said his mom Stephanie Fore. "Brady had a normal beginning in life; the future was bright and full of ideas. We knew right away that he was a perfect angel, little did we know how right we were."

Fore said she was plagued with feelings of "something not quite right" shortly after his May 21, 2002, birth.

It was more than two years until the Fores had an answer to the questions of what exactly was wrong with Brady.

"He wasn't making the milestones that babies are supposed to do," Fore said. "And then the seizures started."



Also starting was the family's distinct lack of presence in the Land of Nod.

"Sleep?" she asked. "If you had asked me that last week, I couldn't have told you, but on Wednesday, we had surgery that installed a Vegas Nerve Stimulator (VNS) and it's been a godsend."

Described as a device that "resets" the brain, it is credited with preventing Brady's seizures by sending electric impulses to the brain every four minutes.

"Doctors made a small incision on his chest and it's a wire that runs just under the skin to his neck and wraps around the Vegas nerve," Fore said. "He has slept through the night since he had the surgery."

And that's just the latest in a list of milestones Brady has accomplished.

When Brady was first introduced to readers, he could not walk and doctors predicted he never would.



They were wrong.

"He surprised everyone and started walking in October," Stephanie said. "Unaided, by himself. Life for us is just great. Used to he would stay awake all night, sleep about two hours after my husband went to work, and then was up until the next night.

"So when I say things are great, they really are great," she said.

Brady hopes to show off his skills in May during the annual Angelman Walk where he and his family will join others in bringing about awareness of the genetic condition that affects only about 20,000 people in the United States and Canada.

"We are doing the Angelman Walk in Mobile this year," Fore said. "It's going to be held Sat., May 17.

"We do these walks every year as an opportunity to bring parents together, share stories, as well as a chance to raise money for the Angelman Organization," she said. "It's so funny that a lot of times the same people who are on our support group, it's like we know them.

"Now we'll get to meet them the first time," she said.



The Fores are also seeking donations to help raise awareness about the rare syndrome. To read more about Brady's journey in life or to donate to his cause, visit his blog at http://sweetsweetangels.blogspot.com.

"I ask that you not feel sorry for Brady, but instead learn from him," Fore said. "He will most likely lead a better life than most of us. He draws anyone who meets him near and makes new friends wherever he goes.

"He has a huge loving, supportive group of friends and family members, great therapists and a great pediatrician," she said. "He has an exceptional big brother that looks out for him. We are truly lucky. God has blessed many people's lives through our little Angel.

"What more could we ask for?"

posted by angelwings @ 9:12 PM
   0 comments
Thursday, March 20, 2008
Just wanted to post a quick update. We went to the neuro today,it went very well. I think he must have been as excited as we are,with Brady's progress and overall appearance. He said that Brady looked great,and considering how well he is doing at this VNS setting,he isn't gonna do anything else to it,for now. We are going to keep the setting the same and see how it goes the next three months. If all goes well,we will start weaning him off of the topamax at that point. He was so excited about Brady sleeping through the night now. He said he normally doesn't like to tell the parents "I told you so",but in this situation,he was so happy to be saying that. He was just so positive that the VNS was the way to go for Brady. He knew that we were hesitant to begin with,so that's when we started the depakote. He did that to basically,keep Brady out of the hospital. I think he knew that it was going to take the VNS to finally get things under control. He also agreed with me,that Brady was most likely having seizures at night,causing him not to sleep and was probably having many others that we weren't seeing. So I am really relieved that we went with the VNS,even though we were pretty nervous about it. He did use the little computer to check the VNS,all looked well with it. He also used the magnet to show us how to activate it,our first activation with the magnet. Brady done so well with it,he just giggled when he felt it going off and was looking at his chest,it must have tickled. When the device is activated with the magnets,it is stronger than when it activates at the scheduled times. So if we have a seizure we can activate the device instantly,wait a minute and if the seizure doesn't stop,activate again,we can do this 5 times in a row,which would equal 5 minutes. After 5 minutes of seizing,we would give diastat,same as usual after 5 minutes. Were just believing that we wont have to use the diastat anymore (fingers crossed). Anyway as I said,overall it was a great visit. I will keep you guys posted.
I do have to tell you all what happened at Chucky Cheese's last week,forgot to mention in my previous posts . Brady of course hung on Maw maw all night,wouldn't get down and play at all. But he did really seem to enjoy all the action happening around him. Anyway we were heading out the door to leave,letting the girl check out stamps to make sure we weren't stealing any children,lol. Anyway as we were making our way out the door,I looked back at Brady,he was holding Maw maws hand,and his pants were down around his ankles!!!!!!!!!!!!!!!!! I swear,I thought I was going to bust a gut laughing!!! Finally the rest of the family turned around to see what was going on,and we all must have looked a sight,standing there with Brady's pants around his ankles,all of us laughing like mad. I don't think that poor girl at the door knew what to say,I think she was trying not to laugh,but she couldn't hold it in. Brady of course,thought it was pretty darn funny,lol lol.We were all in a single file line,so Im not sure how long Maw maw was dragging poor Brady along with his pants on the floor.
Anyway just thought Id give you a laugh. I will post more later. Nite all

posted by angelwings @ 8:20 PM
   1 comments
Wednesday, March 19, 2008
Brady playing.

posted by angelwings @ 3:58 PM
   0 comments
Tuesday, March 18, 2008
Brady continues to do great. He is still sleeping every night. He really does act like he feels so good these days,and his mom is feeling lots better too,lol. We go back to the neuro Thursday to get his VNS turned up for the third time,as well as talk about his meds. They are prob going to start weaning him off the Topamax that day. We are a little nervous,but anxious to get this show on the road. Anyways not much else happening here. I will post more after we get back from the doc on Thursday.

posted by angelwings @ 7:25 PM
   2 comments
Saturday, March 15, 2008
Well,Brady continues to do GREAT!!! He is asleep as I type,its only 11pm!!! He crawled up on the bed and fell asleep,on his own. He has slept every night since he got his VNS,we are just thrilled. I have to say,this is the most sleep he and I have had in over a year,and it is just wonderful!! Im not sure what,about the VNS,has caused him to start sleeping. The only thing I can figure is that the jerks,that they called myoclonic jerks,while he slept,must have been seizure related,keeping him awake all night every night. He is so calm and still now when he sleeps,like a different kid,he doesnt jerk at all anymore. He goes to sleep fairly early each night,and sleeps til 7 or 8am. I swear,its almost like we have some normalcy in our lives now,lol. He is actually getting into a sleeping routine,which we havent seen in a very long time. Im so hoping that this continues,so we can pick back on some of our therapies,maybe even throw in some horseback riding now!! And hopefully he will get to start school soon,if everything continues as is now. Another cool thing he has done,is to sit and watch a movie,pretty much all the way through. For those of you who know Brady,know that he has never sat still to watch a movie,for more than a couple of minutes,so this is a huge improvment. Also,his shakiness and stumbling has nearly stopped all together,he is much more organized than before. I believe he was having far more seizures than any of us realised. Anyway,just wanted to catch you guys up to date on the progress here. I will post more later. Also,be sure and check out the video and picture link at the bottom,right of the page,for recent videos and pictures of Brady.

posted by angelwings @ 11:00 PM
   1 comments
Just wanted to let yall know,Brady is doing great!! He has slept every night,all night since Wed night,waking up at 7 or 8am every day. The one thing that I have noticed with his sleeping,since the VNS, is no jerking,AT ALL!! He sleeps so soundly and is so calm,I have to put my hand on his chest to be sure he is actually breathing. Before Wed if he did go to sleep,which was rare,he jerked all night long. I could never pin point if it was seizure activity or just myoclonic jerks,but now I'm thinking that maybe there was some seizure activity going on,keeping him from being able to sleep. He acts like he feels so good and has wanted to spend every day outside. He fusses when we bring him inside,he is becoming quite the outside boy. Other than that,he hasn't been fussy at all,he is very happy,back to his old self again. Its so nice to see him calm,happy and rested :) It's a little early to say,but it seems that his aggressive behaviors are getting better as well!! The other thing that Im noticing,is that his shakiness has nearly gone away all together. He used to be especially shaky when he woke up,but he isnt doing that anymore. Anyway,just wanted to post a quick update.

posted by angelwings @ 12:06 PM
   0 comments
Friday, March 14, 2008
Brady at the hotel,day before surgery.



posted by angelwings @ 9:00 PM
   0 comments
Well,we are back home. Brady's surgery went great. He came through like a trooper,no complications and very little pain meds afterward. He was a touch cranky when he first came out,but most likely because he was still a bit groggy from being put to sleep. They ended up up doing the previous version of the VNS battery,which is a little bigger,but the smallest,latest one,has been recalled,very recently. So if he had gotten his surgery in Feb,he would have gotten the recalled one,scary!!! God has a way of working these things out for us. You can see the outline of the batter on his chest,hes so skinny. But it doesnt look nearly as pronounced as I thought it would.
Anyways,Wed night his IV kept causing the pump to alarm,so instead of putting a new one in,they opted to just take leave it out. Brady was so glad to get that IV out,it meant freedom,lol. He went straight to the sink in our room,when I would block that,he would go straight for the bathroom. He was running all over the room. We took him for a walk in the wagon,which he totally loved. He is such a people watcher,I think he could just sit and watch the people go by,all day long. Not to mention that we were on the third floor,so we could look over the balcony at the big water fountian,and that was the view from our window as well. We also got to play with Cooper,he as a big brown labrador retriever that comes to visit the hospital. I have to say though,Brady was more interested in the lady doc that was playing with the dog,lol. He made friends with everyone,and tried to visit everyone elses rooms. Brady ended up sleeping all night. If course he has to wear "no no's". They are a type of ortho brace,on his arms,keeping from being able to bend his arms,and mess with his bandages. He has managed to take them off,but at least it takes a while. He was taking them off without even undoing them,but now has figured out how to get the velcro undone,which is amazing seeing as how he cant bend his arms at all. So we have gone to plan C now,the velcro straps have tape over them. We will see how long this fix lasts. We did take the no no's off tonight for his bath,and had to fight him the entire time,he was trying to rip the bandages off of his incisions,thank God for no no's!!! I have got a laugh out of them though. We forget that he cant bend his arms,and give him a cup,or something to eat,and he just sits there,leaning his head forward with his mouth open and tongue out,but cant get them to his mouth,lol. He is so patient with us though,he doesnt fuss,he figures we will realise it soon enough. I gave him some cheerios this afternoon while I cooked supper, he just poured them out and was stomping around on them. Craig came in and told him to eat his cheerios. In a few mintues Craig said,Steph,he cant put them in his mouth!!! We both started cracking up,and so did Brady. Craig said Im sorry you have dumb parents man,but were the only ones you will ever have,so just hang in there,lol.So we took a no no off,and Brady was happy to eat his cheerios,lol.
Anyways we hung outside most of the day today,Brady's idea. He has been enjoying being outside,so much. He acts as if he can bend his arms just fine,and as if he hasnt been through anything,he is one tough little cookie,so much tougher than his mom.
I really dont ok before his surgery,but after they had him back and hour,I said ok hes been back long enough,its time now! I literally got sick on my stomach,because I was sorry worried about him.
As for his device,I believe they said it is set to go off every 5 minutes,for 30 seconds at the time,but they did increase it just a touch before we left,so it might a little more than that now. He did notice it a little bit at first and would swallow hard about 3 times when it first started,but he quickly got over that and doesnt seem to be bothered at all now. I do notice him drooling quite a bit now,could be from having the tube down his throat though.
We go back to the doc in a week for an increase,and then I think it will be every 2 weeks after that. I think they are going to start taking him off of the topamax pretty quickly,so were keeping our fingers crossed. We know it will take about a year for this thing to reach its full potential,so we just have to be patient.
Well thats about it for now,I have to get back to Brady. I did get some videos of him,just have to figure out how to get them to here. Im going to do that after this post,so keep checking back. Thanks for all the thoughts and prayers guys. HUGSSSSSSS

posted by angelwings @ 8:00 PM
   0 comments
Monday, March 10, 2008
Just wanted to post a quick update. Brady is doing well,had a great day. He seems to be over whatever was causing his issues last week,so far no more seizures other than some absents. We are super stressed here at the moment,worrying about Brady's upcoming surgery this week and to top it all off,we have some personal issues happening with Peyton right now,nothing he done wrong though. He is such a tender hearted kid.
Anyways please be praying that things work out with Peyton and that he feels better soon. And pray that Bradys surgery goes well,and that he has a speedy recovery. Also please pray that we can make it through this week without completly loosing our minds :O Anyway I prob wont post again til after Bradys surgery,we will be home Thursday,so keep checking back,and dont forget the prayers,we could sure use them. Thanks a bunch.
P.S. Say a prayer for mom, I am coughing,running fever and have a sore throat!! I just hope that we can get through without Brady catching this mess.

posted by angelwings @ 1:01 AM
   3 comments
Friday, March 07, 2008
Well I wish I had better news to post tonight..... Brady isnt doing so well at the moment. He has been stumbling all over the place since yesterday,and is extremely shaky today and tonight. He has been really cranky today,so something is going on. He went to sleep for about 5 minutes tonight,but had a mild seizure and is now awake. I have been suspecting seizure activity for a couple of days now,I just have that gut feeling that something is going on with him. Im wondering now if his stumbling and falling might be caused by drops,Im just not sure. He doesnt seem to be getting sick,no temp so far. Ive got our bags packed and ready to go,just in case,hopefully we wont need them. Anyways please keep our little man in your prayers. I will post more tomorrow on how hes doing. Thanks a bunch.

posted by angelwings @ 12:41 AM
   1 comments
Thursday, March 06, 2008
Well,its 3am here,Brady slept until about an hour ago,which is great! We have a big day tomorrow,or today I should say,lol. We first have to go see the doc for a yearly screening,just found out today that Bradys is out of date,thats all we need with surgery coming up next week. Then we have to find somebody to cut Bradys hair,hes starting to look a bit like a hippy these days. I think were going to keep it somewhat long though,just trim it up a bit. He looks so cute with longer hair,Im gonna have to get some pictures on here soon. Anyways then we have an appt here at 2pm,and have to find somewhere in between there to fit sleep into the equation.
Brady is doing well,in a fantastic mood. Hes playing with his toys at the moment. He does seem a bit off balance for some reason,we might have to visit the ENT tomorrow to get those ears checked out,just in case. Anyways sorry for the boring update,but not much else going on here,thank goodness!!! Since were going to be out and about today and Brady will be fully dressed,some of the time anyways,I think we will try to get some videos and pictures to post. So check back tomorrow,ok.

posted by angelwings @ 3:13 AM
   0 comments
Tuesday, March 04, 2008
Just wanted to share this one with you guys,stole it from Donna,thanks,lol.

The Special Mother
by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."
"Forrest, Marjorie; daughter. Patron saint, Cecelia."
"Rutledge, Carrie; twins. Patron saint, Matthew."
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has her own world. She has to make her live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'". She will never consider a "step" ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".
"And what about her Patron saint?" asks the angel, his pen poised in mid-air.
God smiles, "A mirror will suffice."

posted by angelwings @ 9:27 PM
   0 comments
Brady is doing well,like a wild man tonight though. Maw maw is staying with us while we all brace for the bad weather heading our way. Of course Brady is about to pull her bald and climbing all over her,sigh........
We had a good day today,went to town with Maw maw,and cleaned house. While I cleaned the rug,Brady was busy helping,by pouring pop corn out all over it. We went to visit Maw maw,and Brady decided it would be fun to flip the stroller over,with him still strapped in. He landed partially on a cactus and cut his hand and busted his lip. He never once cried like it hurt,but he did have a look of shock on his face. Even while I cleaned him up,he never acted like it hurt at all,hes a tough little cookie. But hes ok now,thank goodness.
Oh and great news!!! We finally found the strange smell radiating in our bedroom!!! We have been trying to locate this smell for a week now. It was the all to familiar smell of a wet Brady diaper. I pulled the bed out,looked behind all the furniture,but still couldn't find it. Anyway this afternoon Craig came down the hallway,saying I found the source of our stinky bedroom. He was carrying one of Brady's toys. Brady had an old,wet diaper tightly stuffed inside his toy,lol lol. I guess he got it out of the bathroom garbage. I took it off to put him in the tub,but didn't notice it disappeared. So when I was doing laundry he came through the bathroom and swiped it. He also got a clean diaper,thank goodness,and stuffed it down in our piggy bank,we cant get that one out. I swear this kid will stuff socks,wet wipes,diapers,or anything else he can find,into anything he can find to stuff them in,its just crazy,lol. I'm always having to dig things out of my shoes before I can put them on.
Anyways not much else going on here. I will post more later.

posted by angelwings @ 12:40 AM
   1 comments
Monday, March 03, 2008
Well we had a bit of a rough day Saturday,Brady was really on it. As most of you know,Maw maw lives in front of us. Well we were all outside,when Brady climbed up into his wagon to go for a stroll. So Peyton volunteered to take him. For some reason Peyton took Brady up to Maw maw's! He came back in just a minute without the wagon or Brady. He said oh Maw maw wanted to keep Brady,lol. I said well you just take your brother and abandon him!! So anyways She had cooked dinner,so we walked up to her house to eat. When it was time to go,Brady refused to go with us. He was clinging to his Maw maw. I grabbed his hand and said come on,but he refused and bit my hand,then flung himself in the floor,still holding onto to Maw maws hand with his other hand. Everytime we tried to take him,he screamed and went totally limp on us,and tried to sneak a few more bites in,he threw and all out tantrum!! On one hand that's a good thing,its a leap forward in his developmental stage,but sheeesh not a pretty site. So anyways we left him there,after Maw maw begged us,and said she needed to catch up on her Brady sugar. So that night,we all went to a home improvement store,where Brady continued to cling to his Maw maw. When he was in the buggy,he didn't want me pushing him and would try and bite me if I tried. So Maw maw had to push him everywhere. Well I took him out to walk,thinking it might give Maw maw a break,not.... He wanted nothing to do with his dad or me and would try to bite me when I even tried to hold his other hand,he only wanted Maw maw. He refused to walk,without holding her hand and he didn't want Peyton anywhere near her,he was being a Maw maw hog. We went to dinner after and sat Maw maw on the other end of the table,which worked out pretty well. He ate a huge meal. When he ran out of mashed potato's,he thought that the white gravy in the other bowl was mashed potato's and he refused to eat anything until we fed it to him,lol. So he ate the entire bowl of gravy,lol lol. He was happy to eat other things one he ran out of that. Of course we had to slide him far away from the table,as he was trying to clear all the food from the table.
But we ate,and made it home without incident. He slept all night,which was a huge relief. Oh yea,I road him on Peyton's dirtbike,he had a ball. But now he thinks that everytime Peyton rides,he is supposed to go with him. He pitched quite a tantrum when we wouldnt let him ride.
Today was much better,but he was still a bit honory,nothing like yesterday though. He played outside in the sand all day,and loved it. He didn't want to come back inside of course.
He fell asleep early tonight,he seems to have an upset tummy though:(
Well that's about it for me. Im gonna try and get some sleep now. I will post more later.

posted by angelwings @ 12:35 AM
   0 comments


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy