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Tuesday, March 18, 2008 |
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| Brady continues to do great. He is still sleeping every night. He really does act like he feels so good these days,and his mom is feeling lots better too,lol. We go back to the neuro Thursday to get his VNS turned up for the third time,as well as talk about his meds. They are prob going to start weaning him off the Topamax that day. We are a little nervous,but anxious to get this show on the road. Anyways not much else happening here. I will post more after we get back from the doc on Thursday. |
posted by angelwings
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7:25 PM
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| 2 Comments: |
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Hi,I,ve been surfin in for a while now.It,s great news that Brady is doing so well these days,sleep is good for everyone,lol.Hope things continue to go great for him.I also hope that his mentor/big brother Peyton is feeling better too.All the best to the whole family.
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Brady...I hear through the grapevine from my Mom that you are doing awesome since your surgery! It is so wonderful to hear! I love how you work the octopus shape toy...how cool of a toy is that!!! Good luck at the doctor's. I bet he is going to be amazed! Love Emma
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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Hi,I,ve been surfin in for a while now.It,s great news that Brady is doing so well these days,sleep is good for everyone,lol.Hope things continue to go great for him.I also hope that his mentor/big brother Peyton is feeling better too.All the best to the whole family.