|
 |
|
Saturday, March 15, 2008 |
|
| Just wanted to let yall know,Brady is doing great!! He has slept every night,all night since Wed night,waking up at 7 or 8am every day. The one thing that I have noticed with his sleeping,since the VNS, is no jerking,AT ALL!! He sleeps so soundly and is so calm,I have to put my hand on his chest to be sure he is actually breathing. Before Wed if he did go to sleep,which was rare,he jerked all night long. I could never pin point if it was seizure activity or just myoclonic jerks,but now I'm thinking that maybe there was some seizure activity going on,keeping him from being able to sleep. He acts like he feels so good and has wanted to spend every day outside. He fusses when we bring him inside,he is becoming quite the outside boy. Other than that,he hasn't been fussy at all,he is very happy,back to his old self again. Its so nice to see him calm,happy and rested :) It's a little early to say,but it seems that his aggressive behaviors are getting better as well!! The other thing that Im noticing,is that his shakiness has nearly gone away all together. He used to be especially shaky when he woke up,but he isnt doing that anymore. Anyway,just wanted to post a quick update. |
posted by angelwings
@
12:06 PM
  |
|
|
|
|
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
Brady at the hotel,day before surgery.
Well,we are back home. Brady's surgery went great....
Just wanted to post a quick update. Brady is doing...
Well I wish I had better news to post tonight........
Well,its 3am here,Brady slept until about an hour ...
Just wanted to share this one with you guys,stole ...
Brady is doing well,like a wild man tonight though...
Well we had a bit of a rough day Saturday,Brady wa...
Wow,two posts in one night,am I on it or what,lol....
Just wanted to post a quick update on Brady. He is...
|
| Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |
