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Friday, June 17, 2005
Love my New Ball Pit!
love my new ball pit Posted by Hello

posted by angelwings @ 10:32 AM
   0 comments
Oops, Forgot to Lay Down!
oops forgot to lay down,so just decided to sleep standing up Posted by Hello

posted by angelwings @ 10:32 AM
   0 comments
Had to Give it Up!
had to give it up,just to tired. Posted by Hello

posted by angelwings @ 10:31 AM
   0 comments
Tuesday, June 14, 2005
Yep, Another Seizure!
Hey everybody, I just wanted to let you know that Brady had anothor really bad seizure today.We left early going to speech in dothan,so that we could go by toys r us and pick up a video monitor to put by Bradys bed so that we can see him at night and make sure hes ok.So anyway we were in the middle of toys r us when I noticed him slumped over the buggy seizing.We had to run out of the store to get his medicine out of the van.It took about 10 minutes or so and he was showing no signs of stopping seizing.I had 2 employees and a customer stand by my van wanted to know if the could help,they were freaking out,and to be honest so was I!But I gave him his medicine and got it stopped.We headed home and didnt make his speech therapy today.Man its been a stressful day.But were ok now.He took a good nap this afternoon and is going to up for a while,gonna be another long night.Anyway I will keep you all posted.

posted by angelwings @ 11:50 PM
   0 comments
Monday, June 13, 2005
Let Me See If I can...?
let me see if I can catch this water in my mouth Posted by Hello

posted by angelwings @ 11:35 PM
   0 comments
Not gettin out Mom!
oh no im not gettin out mom!! Posted by Hello

posted by angelwings @ 11:34 PM
   0 comments
Splish Splash!
splish spash i was taking a bath!! Posted by Hello

posted by angelwings @ 11:33 PM
   0 comments
What's this Stuff on my Head?
whats this stuff on my head Posted by Hello

posted by angelwings @ 11:32 PM
   0 comments
Friday, June 10, 2005
Have a Ball Brother!
here have a ball brother Posted by Hello

posted by angelwings @ 12:12 AM
   0 comments
This is tooo cool Mom!!
This is tooo cool mom!! Posted by Hello

posted by angelwings @ 12:08 AM
   0 comments
Thursday, June 09, 2005
Bradys Therapy Room
Hey all, as some of you may know,Brady is getting a therapy room.I havent said anything so far because everyone involved in making this dream come true,has asked to remain annonymous.It is a dream come true for us and most of all for Brady!We are just so excited and want to thank everyone for all their hard work in making this happen.I know that it is taking a little while to get it goin,but God didnt create the world in one day right?!!It is going to be well worth the wait in the long run.So anyway,the ball pit came in today and we took it out of the box to make sure it wasnt damaged.It wasnt,Brady had to play in it.He absolutely loved it.We would take him out,and he would try to climb back in.It is just so cool.I am going to post some pictures of it on here so that you all can share in our excitment.And agian thanks to all of you who are making this happen,you know who you are!!!We love you all!!

posted by angelwings @ 11:59 PM
   0 comments
Forget the Clothes
forget the clothes give me the hanger Posted by Hello

posted by angelwings @ 11:57 PM
   0 comments
Should I be Doing This?
should i be doing this or am i gonna get into trouble?? Posted by Hello

posted by angelwings @ 11:53 PM
   0 comments
Love my Maw Maw
love my maw maw Posted by Hello

posted by angelwings @ 11:48 PM
   0 comments
Na Na Na Na!!
na na na na!! Posted by Hello

posted by angelwings @ 11:47 PM
   0 comments
Happy Birthday to Me!!!
happy birthday to me!!! Posted by Hello

posted by angelwings @ 11:46 PM
   0 comments
Tuesday, June 07, 2005
Another Seizure!!
Just wanted to let everyone know that Brady had anothor seizure this past Friday.We were on our way to the campground and he was sleeping in his car seat.He woke up seizing.I stopped by the road and gave him his diastat,but it didnt stop right away.We actually took off and headed in the direction of the hospital,but it stopped before we got there.He slept for a while,but overed it pretty quick.He is totally fine now,into everything and is a little wild man.Anyway just wanted to keep you all posted.

posted by angelwings @ 6:45 PM
   0 comments


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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