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Thursday, June 09, 2005
Bradys Therapy Room
Hey all, as some of you may know,Brady is getting a therapy room.I havent said anything so far because everyone involved in making this dream come true,has asked to remain annonymous.It is a dream come true for us and most of all for Brady!We are just so excited and want to thank everyone for all their hard work in making this happen.I know that it is taking a little while to get it goin,but God didnt create the world in one day right?!!It is going to be well worth the wait in the long run.So anyway,the ball pit came in today and we took it out of the box to make sure it wasnt damaged.It wasnt,Brady had to play in it.He absolutely loved it.We would take him out,and he would try to climb back in.It is just so cool.I am going to post some pictures of it on here so that you all can share in our excitment.And agian thanks to all of you who are making this happen,you know who you are!!!We love you all!!

posted by angelwings @ 11:59 PM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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