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Monday, May 23, 2005
Seizure
Brady had a seizure this weekend.We were fishing and he was playing in a tent that we had him,so that he wouldnt get bug bit.When Craig noticed that he was having a seizure.We were not sure if we had his diastat because we were on Craigs truck.But thank goodness I had my trusty ole therapy bag,which always has distat in it.We gave it to him and it stopped right away.It lasted about 5 minutes or so,and was showing no signs of stopping.But he was fine after the meds and some sleep.Hes been fine ever since.I will keep ya posted.

posted by angelwings @ 1:29 AM   0 comments
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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