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Sunday, May 08, 2005
Yep, Another Seizure
Ok I really hate to keep posting about seizures all of the time,but thats our life.I didnt realize that I hadnt already posted about this seizure,but anyway here goes.It was the middle of this past week.He had therapy and done extremely well,yey Brady!But after therapy he decided to lay in the floor and go to sleep,this was good because he had another therapy coming up,and he would be nice and fresh for it.So anyway I luckily was sitting here on the computer,instead of trying to get some things done around the house.I noticed that he opened his eyes just breifly and then began to seize.The doc had said that he really didnt want us to give his diastat anymore,because he was taking it so often.So I picked up the phone and called his pediatrician because this was a really long seizure.The doc got on the phone and I explained to him that Brady was seizing while we were speaking and he told me to give his diastat right away.So I did and he stopped shortly after.I more and more nervous each time that he seizes.I think a part of me feels like they are getting worse and with the next seizure he could stop breathing.I have learned to cherish each and every moment with my children.I have realized how fast my life could be changed and my angels taken away from me.You just never know what tomorrow has in store.Anyway sorry to get all sappy,but its a hard thing to deal with,the not knowing.So we have added a new medicine,topamax.We are bringing him up gradually.But now since this last seizure the doc is having us to bring him up much faster than planned.He will be on 8 pills a day!So much for such a little boy,but what do ya do?!Anyway hes a zombie right now,and not himself.They say that it should get better once he gets used to the new meds,I sure hope their right.Its ashamed to take such a sweet natured little boy and make him so irritable and zoned out.Anyway I will keep you posted.We have some good news coming soon though.I wont spoil the suprise yet,some of you already know,dont tell!God bless you all!

posted by angelwings @ 12:20 AM
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About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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