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Tuesday, April 26, 2005
Another Seizure!!
You know,seems all I have done is post bad news lately!But I just wanted to keep everyone up to date on whats going on,so here goes.Brady had 2 seizures today.He was acting strange last night so he and I slept on the sofa bed in the living room,or should I say that we tried,I stayed awake and watched him all night,and he tossed and turned.So anyway this morning I was trying to get him back to sleep so he wouldnt get so tired and have a seizure,and so that he would be nice and fresh for his therapy appt in dothan this afternoon.But he didnt go to sleep right away,and as I was laying beside him,I noticed he was seizing.It was a complex partial so I waited and tried not to give his medicine.It did stop on its own.But I figured that he would have more,so I just waited.And after he took a short nap,he started agian,but this time it was a granmal,much worse.I gave his medicine after a minute or so and it did stop,but he his breathing was very irregular.I thought he was going to stop breathing and got very upset.My mom called in the middle of all of this and I just told her to come home,because I didnt want to be alone with him if he stopped breathing.But anyway he has slept the day away and is now awake and playing.We have increased his meds,it will take about a month to get to the full dose,we like 3 weeks.Anyway next maybe it will be good news when I post agian.I will keep you all posted.Thanks for your prayers...

posted by angelwings @ 4:09 PM
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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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