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Wednesday, April 06, 2005 |
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Making a Wish
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| Just wanted to let everyone know that Brady is making a wish...He has been approved for a wish with the Make a Wish Foundation.And for those of you who know us,Im sure you already know what his wish is.We will just have to wait and see how everything pans out.They are due to come on Thursday,so everyone wish us luck!We will update and let you all know what the final wish is when its granted.Just keep your fingers crossed..... |
posted by angelwings
@
12:43 AM
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What is Angelman Syndrome?
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Tubes done
Brady had Seizures
Getting Ear Tubes
Mean ole Mama
Where's the Seat Belt?
Baby Overboard?
Just Layin out with Friends
Gotta find some Eggs!
Being me Just Aint Easy!
Innocent little Thing
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| Archives |
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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| Angelman Links |
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| Angelman Blogs |
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