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Wednesday, April 06, 2005
More Seizures
Just gonna let everyone know that Brady had a really bad seizure sunday was a week ago.He had to really make the most of it and scare me and his dad to death.It was a major granmal.He turned blue,bit his tongue and made it bleed,and had bread in his mouth which I was afraid of him choking on,so i tried to remove it,and he bit me.Guess i got what I deserved for sticking my finger in there hugh.We got it stopped with his medicine and came on home with him.And we checked his temp which was 102 so we think thats what triggered the bad seizure.Anyway turns out he had pneumonia,and his brother wound up with bronchitis,yey..Needless to say its been interesting around here for a couple of weeks.But they are fine now.Bradys got a little cough,but otherwise on the mends.I will try not to wait so long before doing anothor post.Sorry everyone for being so slow...

posted by angelwings @ 12:47 AM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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