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Friday, May 20, 2005
No Seizures!!!
Just wanted to let everyone know that we made it for a whole week and are working on the second week,with no seizures!!!yey!What a great birthday present for Brady!Brady is growing up so fast,he will be turning 3yrs this saturday.We are going to have his birthday party on Saturday.Anyway we are so glad to finally get to share some good news.Brady is doing well on his new meds and is almost up to his full dose.He is adjusting very well.However we do have a little bad news, since Brady is turning 3,the school system is taking over his therapies,so we are loosing a great physical therapist,we love you Joey and hate to see you go.But do expect to see you real soon.At least now you dont have to work the whole time,now you and Brady can just play,you dont have to be the bad guy anymore!At least we are gaining an old friend for PT.We will have Mrs.Susan,we think shes great too,wish we could have both Mr.Joey and Mrs.Susan,how cool would that be!Anyway just wanted to keep everyone up to date on whats going on with Brady.We will keep you all posted.

posted by angelwings @ 12:20 AM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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