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Tuesday, June 07, 2005
Another Seizure!!
Just wanted to let everyone know that Brady had anothor seizure this past Friday.We were on our way to the campground and he was sleeping in his car seat.He woke up seizing.I stopped by the road and gave him his diastat,but it didnt stop right away.We actually took off and headed in the direction of the hospital,but it stopped before we got there.He slept for a while,but overed it pretty quick.He is totally fine now,into everything and is a little wild man.Anyway just wanted to keep you all posted.

posted by angelwings @ 6:45 PM   0 comments
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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