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Tuesday, June 14, 2005
Yep, Another Seizure!
Hey everybody, I just wanted to let you know that Brady had anothor really bad seizure today.We left early going to speech in dothan,so that we could go by toys r us and pick up a video monitor to put by Bradys bed so that we can see him at night and make sure hes ok.So anyway we were in the middle of toys r us when I noticed him slumped over the buggy seizing.We had to run out of the store to get his medicine out of the van.It took about 10 minutes or so and he was showing no signs of stopping seizing.I had 2 employees and a customer stand by my van wanted to know if the could help,they were freaking out,and to be honest so was I!But I gave him his medicine and got it stopped.We headed home and didnt make his speech therapy today.Man its been a stressful day.But were ok now.He took a good nap this afternoon and is going to up for a while,gonna be another long night.Anyway I will keep you all posted.

posted by angelwings @ 11:50 PM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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  This is tooo cool Mom!!
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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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