|
|
Sunday, November 27, 2005 |
|
Angelman Link
|
| I just wanted to remind everyone who visits this link,that you can learn more about Angelman Syndrome at www.angelman.org And there is a wonderful,supportive listserve for those of you who have loved ones with this disorder.You can just go into your search engine and type in "instructions for subscribing to angelman listserve", and you should be able to find it there.If you have any problems please leave a comment with your email and I will be glad to help you find it.Just remember that,to those of you have loved ones just diagnosed with this syndrome,its not as bad as the literature makes it seem,and you are not alone.It is a challenge most of time and Brady sure keeps us on our toes,but he is a miracle and we wouldnt trade him for the world.Hope you enjoyed Bradys site. |
posted by angelwings
@
11:36 PM
  |
|
|
|
|
Tuesday, November 22, 2005 |
|
Still Waiting to Hear from You.
|
| I am still waiting to hear from the person who posted the not so nice comment a couple of nights ago.So feel free to contact me privately so that you can get your facts straight.Contact me at aunt_steph_25@hotmail.com Look foward to hearing from you. |
posted by angelwings
@
7:41 PM
|
|
|
|
|
Sunday, November 20, 2005 |
|
No Seizures & New Word
|
| Just wanted to let you all know that Brady is still seizure free so far.He is doing great!He has been seizure free for nearly 3mths now,we are so excited!He is learning in leaps and bounds.He is babbling alot more and he actually said his name this week.He was playing in the living room and was just babbling.All of the sudden he said Brady Boy,thats what we call him most of the time.I would never have believed it if someone else had not heard it as well.Anyway just thought I would let you all know how well he is doing.I will post again soon. |
posted by angelwings
@
10:46 PM
|
|
|
|
|
|
On a Lighter Note!
|
| Brady is doing so well.He is walking all over the hot tub.He walks the benches around the sides.His therapist is pleased with his progress as we are.She is able to sit him on the benches and do all of his stretches on his legs and he doesnt fight like he used to,when outside the water.He is also doing well in other areas too.He is also learning to put blocks into anything he can find to put them in.He also trasfers from one container to anothor.Anyway as I sit hear and type,he seems to be having more and more absense seizures.But those we can handle,they are not life threatning and do not really interfere with his daily activities.He has done so well lately as far as the complex partials and granmals go.It is coming up on the 3 mth mark,we are excited!Anyway just wanted to update those of you who try to keep up with his progress.Thanks for your support.Oh by the way for the person who was wondering about this website,it is FREE! |
posted by angelwings
@
9:23 PM
|
|
|
|
|
|
Feel free to Email Me.
|
| Just wanted to invite anyone who would like to talk, to email me at aunt_steph_25@hotmail.com Looking foward to hearing from you. |
posted by angelwings
@
8:05 PM
|
|
|
|
|
Saturday, November 05, 2005 |
|
No Advertising Pease!!
|
Okay first off,I mean this in the nicest way possible.But let me just say,while we appreciate and welcome everyone who visits or is going to visit bradys blog,we ask that there be no advertising,or soliciting of any kind done from this site.We welcome any comments that are related to Brady or his blog.Thank you so much for your understanding.
Bradys mom |
posted by angelwings
@
7:52 PM
|
|
|
|
|
|
No Seizures!
|
| Okay I have been holding off on this post,not wanting to jinx anything.But I have to post its just to exciting.Brady has been about 2 mths with no seizures at all.He is doing wonderful.Hes doing things things that I have never seen him do before.Hopefully we are going to be able to move foward now and not backwards due to seizures.Keep him in your thoughts and prayers please! |
posted by angelwings
@
7:44 PM
|
|
|
|
|
| |
