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Sunday, November 20, 2005
On a Lighter Note!
Brady is doing so well.He is walking all over the hot tub.He walks the benches around the sides.His therapist is pleased with his progress as we are.She is able to sit him on the benches and do all of his stretches on his legs and he doesnt fight like he used to,when outside the water.He is also doing well in other areas too.He is also learning to put blocks into anything he can find to put them in.He also trasfers from one container to anothor.Anyway as I sit hear and type,he seems to be having more and more absense seizures.But those we can handle,they are not life threatning and do not really interfere with his daily activities.He has done so well lately as far as the complex partials and granmals go.It is coming up on the 3 mth mark,we are excited!Anyway just wanted to update those of you who try to keep up with his progress.Thanks for your support.Oh by the way for the person who was wondering about this website,it is FREE!

posted by angelwings @ 9:23 PM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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