Click Here to Read Brady's Story
Sunday, November 27, 2005
Angelman Link
I just wanted to remind everyone who visits this link,that you can learn more about Angelman Syndrome at www.angelman.org And there is a wonderful,supportive listserve for those of you who have loved ones with this disorder.You can just go into your search engine and type in "instructions for subscribing to angelman listserve", and you should be able to find it there.If you have any problems please leave a comment with your email and I will be glad to help you find it.Just remember that,to those of you have loved ones just diagnosed with this syndrome,its not as bad as the literature makes it seem,and you are not alone.It is a challenge most of time and Brady sure keeps us on our toes,but he is a miracle and we wouldnt trade him for the world.Hope you enjoyed Bradys site.

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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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