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Thursday, July 20, 2006
Update on Brady
Well Brady is still sick,but doing some better.He is eating a drinking now,but is still running fever daily.He also still has some spots on the sides of his tongue.Otherwise he acts like he feels fine and is jabbering up a storm and into everthing.We went to the Ent today to see if they could find any reason for fever,but other than the spots on the tongue everything looked fine.He did do a mononucleosis test and one other test on him,but we havent got the results back just yet.Wow its been a tough summer,I thought eventually things would settle down and we might be able to enjoy big brothers time summer vacation,oh well.
Also just wanted to let everyone know that Brady got into Shriner's Hospital,so we will be traveling up there in October.We dont know if he has any problems with his legs or hips,but we want to be sure.
Also Brady gets his cast off on Monday,yipppppeeee!!!!We are going for swim right when we get home.He stands on the couch every night and watches for the pool light to come on.He is just pitiful about the water,and cant wait to get in.
Anyways just wanted to keep you all posted on whats going on in Bradys world.Bye for now.

posted by angelwings @ 10:26 PM
   0 comments
Thursday, July 06, 2006
Brady Just got out of the Hospital
Well Brady just got out of the hospital,he has some kind of sores in his mouth and he quit eating and drinking.He got dehydrated and had to go in for fluids,he is on antibiotics and an appetite stimulant to help with his eating.He is home back now and doing much better,has been drinking some today and is eating much better now. Hopefully his new meds are working for him. These kiddos can be a mystery sometimes.

As far as his babbling,its getting so much better.He is saying ma ma ,buba,da da,boo bah,and his most recent word,is mooooor,when he wants more to eat,drink or more of anything else.He says these words when prompted most of the time,and says them frequently and appropriately.He is also babbling all the time, all kinds of sounds.We will sit and carry on conversations with us,even though we have no idea what hes saying most times,he is so proud of himself and so are we!!!I never thought I would hear that little mouth say mama,and it just feels so awesome!!!

Anyway just had to brag a little will keep you all posted.

posted by angelwings @ 10:14 PM
   0 comments
Monday, July 03, 2006
This is my friend Meagan
This is my friend Meagan,isnt she a beauty!!!!

posted by angelwings @ 12:36 AM
   0 comments


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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