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Thursday, July 20, 2006 |
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Update on Brady
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Well Brady is still sick,but doing some better.He is eating a drinking now,but is still running fever daily.He also still has some spots on the sides of his tongue.Otherwise he acts like he feels fine and is jabbering up a storm and into everthing.We went to the Ent today to see if they could find any reason for fever,but other than the spots on the tongue everything looked fine.He did do a mononucleosis test and one other test on him,but we havent got the results back just yet.Wow its been a tough summer,I thought eventually things would settle down and we might be able to enjoy big brothers time summer vacation,oh well.
Also just wanted to let everyone know that Brady got into Shriner's Hospital,so we will be traveling up there in October.We dont know if he has any problems with his legs or hips,but we want to be sure.
Also Brady gets his cast off on Monday,yipppppeeee!!!!We are going for swim right when we get home.He stands on the couch every night and watches for the pool light to come on.He is just pitiful about the water,and cant wait to get in.
Anyways just wanted to keep you all posted on whats going on in Bradys world.Bye for now. |
posted by angelwings
@
10:26 PM
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What is Angelman Syndrome?
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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people with Angelman Syndrome (AS) to exchange information with each
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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