Angelman Syndrome, Life as an Angel

Monday, March 24, 2008

Well,just wanted to let you guys know that Brady continues to do great!! He just seems to be thriving these days,though still very active,lol. He and I went on a little shopping venture last week,it was very interesting to say the least,lol. I had no stroller or cart to put him in,and he was just thrilled about this. I fished him out of the mens dressing room several times. He rearranged all the folded clothes on the shelves and had to entertain everyone that got within 20 ft of him. I'm normally a very thrifty shopper,I love a bargain,but I didn't even have time to check out prices,for chasing him around the store. He would run off,so I would stop looking to go and get him,he would then go totally limp and sit down in the floor,refusing the go with me. We finally got up to the check out,in the shoe dpt,where he rearranged all the shoes,Im sure the workers were so appreciative of all his help,lol. So while were standing in line,I turned around to see him digging through a womans purse in line,and she was letting him,all the while smiling and talking to him,she didn't seem to mind at all,lol. I dragged him out of her purse and put him in a leg lock while I wrote my check,he wasn't to happy about it,but at least it kept him still for 5 seconds,lol. Yeah,I know it sounds like a nightmare,but Im so thankful that he is capable of running around the store,that he is so happy and so sociable. He really can be such a handful,but he is so much fun. He has such an amazing little spirit,one that could make even the most bitter person smile and maybe even laugh a little. Im just so thrilled to see my little man walking,or running should I say,it has been such a long time waiting for this day to come. Brady has accomplished so much,despite all that he has been through,he is such an inspiration. He is a tough little cookie!!
Anyways, he has almost totally recovered from his surgery now. He doesn't have to wear his no no's anymore,he doesn't mess with his stitches,except for an occasional scratch. We havent seen any seizures as of yet,and he is still sleeping through the night. I still don't know what to do with myself these days,it feels so strange to actually get to go to bed. I'm finally getting to try out our new bed,whooo hoooo!!
Well we go back to the doc on April 3rd,just for a checkup,but I will keep you guys posted on how it goes. Thank you all so,so much for your support,thoughts and prayers these days,it means so much to our family. Thank you Clint,for donating to Brady's fundraising efforts for the Angelman Organization,we all appreciate it very much. Hope all of you are doing well. Brady sends big hugs and sloppy kisses to everyone.

posted by angelwings @ 9:04 PM 0 comments

0 Comments:

Home Post Edit Post a Comment

What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home Post Edit

Just wanted to post this article,about Brady, that...
Just wanted to post a quick update. We went to the...
Brady playing.
Brady continues to do great. He is still sleeping ...
Well,Brady continues to do GREAT!!! He is asleep a...
Just wanted to let yall know,Brady is doing great!...
Brady at the hotel,day before surgery.
Well,we are back home. Brady's surgery went great....
Just wanted to post a quick update. Brady is doing...
Well I wish I had better news to post tonight........