Angelman Syndrome, Life as an Angel

Saturday, March 29, 2008

Brady is still doing really well,but had a tough night last night. He went to sleep around 12am but was back up at 3am and ready to play. We fought with him for about 4hrs before we finally got him back to sleep. He only slept a couple more hours and has been going strong since. He has been in a happy mood today,but also very destructive. We were trying to get some things done around here,so we sent him up to Maw maws house for about an hour. She brought him back home saying that she just couldnt keep his clothes on,he thought that he should run around naked the entire time. He has been borderline manic all day,she just got to the point she couldnt handle him. He has been extremely head strong today,more so than usual. He has been in one of his moods,that he wanted things done,when he wanted them,and exactly how he wanted them and would do whatever it took to make this happen. I know that some of this is just typical 5yr old behavior,we tend to forget that at times.
He did do something that I was very proud of though. We walked back up to Maw maws house this afternoon,and Brady just started pitching a fit,going to the kitchen. I kept bringing him back out,but he was determined that there was something that he wanted in there. I finally got him a bag of popcorn on the counter,but he wouldnt have that,he went back in there and continued fussing. So finally I said Brady what do you want,duhhh,all I had to do was ask,lol. He grabbed a paper plate off the counter and trotted to the living room,giving it to Maw maw. See she always has lots of veggies cooked,things he really loves,and that was what he was wanting all the time!! We fixed him some homeade veggie soup and green beans,he was just thrilled. Whoo hoo,a kid that doesnt want junk food,but wants veggies,lol. Anyways I was just thrilled that he was able to make his point so clearly to us,he knew very well what he wanted. I swear we parents can be such dumbheads,as my 9yr old says,lol. Just goes to show,we have to learn to listen better.
Anyways,Brady is sleeping now,hopefully for the night. I do hope that he will be a little calmer tomrrow. I know his manic behaviors today,were just because he was so tired,he gets that way when he doesnt sleep.Im going to take some pictures tomorrow,so check back tomorrow night for more pictures and maybe even some video. Hope everyone has a great night. :)

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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