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Saturday, August 27, 2005 |
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Seizure/babbling
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| Well just wanted to let everyone know that Brady had another seizure about midnight last night.It was the same kind as the last ones.I dont know what is going on!We were so excited and still are,Brady started saying da da da da last night.He was trying so hard to talk,hes never shown and interest in talking before.I told Craig,I just hoped that he didnt have a seizure and loose what he had learned.Well in about an hour he did!I havent heard him say it again.Hopefully he is just tired and will be able to say it again.We did manage to get it on video at least.Like I said one step foward and two steps back!It just seems so unfair,I hate seizures!I will keep you posted. |
posted by angelwings
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11:09 AM
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Thursday, August 18, 2005 |
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Another Seizure Today!!
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| Well well,Brady had another seizure this afternoon.This is two days in a row now.We were so excited about him going a month without one.It is so discouraging.They set him so far behind and not to mention,take ten years off our lives everytime!Please everyone be praying for him not to have anymore,it just takes so much out him.Looks like its going to be Angel watching again tonight,gonna be a long one.He didnt go to sleep until about 3am this morning and hasnt slept much today.I hope he can get some sleep tonight.He has an early orthopedic appt in the morning.Anyway just wanted to let you all know what was going on and remind you to keep him in your prayers.I will keep you all posted |
posted by angelwings
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7:00 PM
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Wednesday, August 17, 2005 |
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Another Seizure!!
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| Well Brady was seizure free for 1mth,1week,and 1 day until today.He had seizure just like the last one.Not sure what kind it was.We were at his grandmothers house who lives in front of us, when he started.We had to rush him back down to my house to get his medicine to stop it.He seized for about 5 minutes before we were able to get his medicine in him.We really thought he was getting better.The minute we let our guard down he has another seizure,its so frustrating.Guess there wont be a whole lot of sleeping in our house tonight.We will be Angel watching again.This was #33 on his seizures,most of them being since March of this year.I will keep you all posted on how he is doing. |
posted by angelwings
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10:08 PM
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Tuesday, August 09, 2005 |
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Seizure Free for 1 Month!!!
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| Can you believe it!!!!Yesterday was 1mth without a seizure!We are so excited!Anyway just wanted to let everyone know that Brady is doing GREAT! No seizures,and getting ready for the big therapy room,and pool.Wow we have such much to be greatful for.I have had alot to post lately huh.Anyway keep praying that our little Brady will continue to be seizure free,the battle isnt over yet,but at the moment we are winning.I will keep you posted. |
posted by angelwings
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11:37 AM
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Just had to Share
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I recently got this email from someone that is acquainted with a family who has a son with Angelman Syndrome.It is so true that God does use messengers.I have always said that God had big plans for Brady,reading this email it really made me look at the big picture and reminded me of what Gods plan is for our little Angel.He is an Angel sent here from heaven,making certain that were doin our best,to take time to love one another.Enjoy.
"Angel" is a word we use to describe certain powerful spiritual beings, but the Greek word it comes from ('angellos') simply means 'messenger'. There are certain people whose very presence carries a message from God, and we have one of them at Grace Community Church. Jeremiah Salter ('Miah') has a condition called 'angelman syndrome' which is very limiting and leaves him in need of a lot of care. It is the way he worships, and the love shown between him and his parents, Karen and Chris, his sister Alicia, and even his faithful companion dog, Ward, that carry a message worth learning, yet difficult to put into words. It was at a midweek time of worship, during one of those quiet moments that happen even in a noisy church like ours, that Miah shouted out suddenly, and I received a definite impression of God's open enjoyment, one I wanted to share, but not right then. This poem, then, is an attempt to convey that word, along with my own love and appreciation for this child of God.
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MIAH ---->There's an angel man comes to Grace:Brings a smile to the good Lord's face.Eleven years old and getting tall,A little lad once, but no longer small,With Dad, Mom, and Sis, taking his place,Yes, bringing a smile to the good Lord's face, Miah's his name, a disabled boy,But in God's presence, oh what a joy!Jumping and shouting while we all sing,Miah's rejoicing before the great King.Look at his face, the wonderful grin,The radiant welcome as Jesus comes in.One night at prayer, in the quiet a shout,Many's the Christian that would send him out,But I heard the Lord quietly say,"Miah's My boy; he is okay." There's an angel man comes to Grace:Brings a smile to the good Lord's face.Angelman's, yes, that's his condition,But angel man here, that is his mission." |
posted by angelwings
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12:23 AM
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