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Thursday, August 18, 2005
Another Seizure Today!!
Well well,Brady had another seizure this afternoon.This is two days in a row now.We were so excited about him going a month without one.It is so discouraging.They set him so far behind and not to mention,take ten years off our lives everytime!Please everyone be praying for him not to have anymore,it just takes so much out him.Looks like its going to be Angel watching again tonight,gonna be a long one.He didnt go to sleep until about 3am this morning and hasnt slept much today.I hope he can get some sleep tonight.He has an early orthopedic appt in the morning.Anyway just wanted to let you all know what was going on and remind you to keep him in your prayers.I will keep you all posted

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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Another Seizure!!
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  Working hard Mudding!
  Still Braving the Heat!
 
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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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