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Wednesday, August 17, 2005
Another Seizure!!
Well Brady was seizure free for 1mth,1week,and 1 day until today.He had seizure just like the last one.Not sure what kind it was.We were at his grandmothers house who lives in front of us, when he started.We had to rush him back down to my house to get his medicine to stop it.He seized for about 5 minutes before we were able to get his medicine in him.We really thought he was getting better.The minute we let our guard down he has another seizure,its so frustrating.Guess there wont be a whole lot of sleeping in our house tonight.We will be Angel watching again.This was #33 on his seizures,most of them being since March of this year.I will keep you all posted on how he is doing.

posted by angelwings @ 10:08 PM   0 comments
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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