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Tuesday, August 09, 2005
Seizure Free for 1 Month!!!
Can you believe it!!!!Yesterday was 1mth without a seizure!We are so excited!Anyway just wanted to let everyone know that Brady is doing GREAT! No seizures,and getting ready for the big therapy room,and pool.Wow we have such much to be greatful for.I have had alot to post lately huh.Anyway keep praying that our little Brady will continue to be seizure free,the battle isnt over yet,but at the moment we are winning.I will keep you posted.

posted by angelwings @ 11:37 AM   0 comments
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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