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Saturday, August 27, 2005
Seizure/babbling
Well just wanted to let everyone know that Brady had another seizure about midnight last night.It was the same kind as the last ones.I dont know what is going on!We were so excited and still are,Brady started saying da da da da last night.He was trying so hard to talk,hes never shown and interest in talking before.I told Craig,I just hoped that he didnt have a seizure and loose what he had learned.Well in about an hour he did!I havent heard him say it again.Hopefully he is just tired and will be able to say it again.We did manage to get it on video at least.Like I said one step foward and two steps back!It just seems so unfair,I hate seizures!I will keep you posted.

posted by angelwings @ 11:09 AM
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About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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