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Thursday, January 24, 2008 |
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posted by angelwings
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12:34 AM
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Well,we spent the day at my grandmothers house today,thank goodness shes used to Brady being into everything!! She is making our little Chip and Dale stripper some strip proof outfits,its great to have a grandmother that can sew anything:) Anyway,Brady was such a big helper. He was trying to play with the needles,scissors,yanking the patterns away and playing keep away with them :O He was going from room to room,and while getting into one thing,eye balling the next thing he was going to get into. He is walking,or running around should I say,like a little mad person.
He really is doing great though,he has had the appetite of a grown man tonight!!! He has eaten two suppers so far,lol. For some reason Brady and his brother have decided to argue like true siblings,and they both get the biggest kick out of it,lol. Peyton does things just to get a rise out of Brady,and of course Brady stands there and tells him off in Swahili language and just giggles about it. Peyton said tonight,oh mama,I think Brady is calling me bad names,guess its good we cant interpret Swahili,lol.
Sheesh,Brady is so manic tonight. Its after midnight here and hes energized as if he had just got up from a big nap. Hes standing next to me,really telling me something atm,but hes very serious about whatever it is hes saying,lol.
Anyways just thought I would post a short update,gotta get back to the manic boy. |
posted by angelwings
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12:24 AM
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Friday, January 18, 2008 |
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Okay this is a brag,so fair warning to all readers,lol......
Brady is doing so well these days!! He is progressing in leaps and bounds,since hes gotten over his sickness and ear troubles. His walking is just amazing!!! He doesn't just walk,he struts. His hands are straight down by his side,his shoulders leaned back and bottom half forward and he shakes his butt,literally,when he walks,lol. He has even learned to squat down,pick something up and stand back up,all without holding onto anything or without falling,whoo hoooo!! His communication and comprehension are really coming along as well. He is learning to follow commands like turning a light on or off,but its usually after he turned it the way we didn't want it,but hey as long as he turns it back to the right position when told,lol. He is also learned to talk back,lol. When I tell him to do something,if he doesn't want to do it,he will shake his head no,hes talking back,whoo hoooo,finally,lol!!! Also his appetite seems to be coming back,there have been times this week that I couldn't feel the little piggy up :) And the best part of everything,he is playing,smiling,walking all over the place,and just back to being the sweet,mischievous little boy that he was. He is entertaining himself so much better than he was before and not nearly as clingy,except with maw maw of course,lol. He even went and got a long sleeve shirt out of his diaper bag the other night. He came over to me and started hitting my arm with it. So finally I said do you want this shirt on,and he shook his head yes. So after I put the shirt on,over his pjs,lol,he didn't even take it off,he was happy. So I guess he was just cold and wanted a sleeve on,duhhh mom!!!
Well I guess thats about it for my bragging,I could go on all night,I'm just so darn proud of him!!! Its so great to see him not sick and so happy!! OHHHH hes throwing balls at the wall now,his daddys on the other side trying to sleep,gottaaa go!!! |
posted by angelwings
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12:04 AM
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Wednesday, January 16, 2008 |
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Things are going good here,other than battling an ear infection in big brother now,uhhh! But Brady is doing very well. His balance and smiles have returned. He is now walking all over the place,without stumbling or falling. He doesn't crawl at all anymore,and has even developed a prissy little mischievous walk,its to cute!! He is much happier now,but very impatient and sneaky at times,lol. I do have to tell what big brother done to Brady tonight,I couldn't help but to laugh,lol. We were all in Brady's room,having movie night,as Peyton calls it. So Brady started pooping in his pants,of course. Anyways Peyton decides that he doesn't want Brady climbing on him,sitting on his face,etc. So it was dark,because of movie night,but I noticed Brady was sitting in one place,moving around,but not moving from the one spot. So I got up to see what was going on and Peyton had hooked daddy's belt around Brady's ankle and attached the other end to the closet door. Brady was tied up like a little puppy!!!!!!! He wasn't fussing though,he was just concentrating on undoing the belt,lol. Of course I did get onto Peyton and tell him not to do that again,he just said well mom he stinks!!! I swear kids think of the craziest things to do!! Anyways its never boring around here with two boys in the house.
Back to Brady,as I said hes doing very well these days. He is making so many choices for himself. He even went and got me a long sleeve shirt to put on him tonight,guess he was cold. So hes wearing a long sleeve over his pjs,real cute,lol. Oh and hes eating like a champ today,were keeping our fingers crossed that this is going to continue.
Well thats about it for now,Bradys taking things out of the desk drawers,gotta go for now. |
posted by angelwings
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1:16 AM
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Monday, January 14, 2008 |
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Just wanted to let everyone know that Brady is doing well since his tubes were placed in on Wed. He continues to walk,practically run everywhere and is into everything,and I do mean everything!!!! He managed to turn the hot water on in his bath a couple nights ago and scald himself,thank goodness the temp wasn't hot enough to do more than just irritate his skin for a few minutes. But we have ordered a new scald free faucet and are just waiting for it to come in so we can install it. Trying to keep Brady out of the bathroom is an impossible feat,so we just have to try and make it as safe as we can,for the times he manages to escape our watchful eyes.
Sleeping is going well these days (knock on wood). He might not sleep all night,every night,but he does go to sleep most every night,thanks to good ole seroquel,lol,of course he still has his moments. But hey a little sleep is better than none,right.
Anyways I will keep you posted on how things are going here. Keep a watch for more pictures,I'm going to post some from New Years soon. |
posted by angelwings
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3:28 PM
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Thursday, January 10, 2008 |
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Just wanted to let everyone know that Brady got his tubes in this morning and is doing very well. He got up at 5am and has just gone to sleep for the first time,its after midnight now. Anyways hes been walking around like a little trooper today,I think hes trying out his new land legs,lol. The surgery went well. The doc said most of the infection was gone,but Brady had a thick,grey cement looking substances around his ear drums. The doc said that both ears were full of this substance and that it was a miracle Brady was able to walk at all. He also said that this stuff had been there for several months,and that Brady had to have learned to walk even though this stuff was present. It was making him really dizzy and his sounds were muffled as if he were talking under water,but he persisted and still managed to start walking,hes a tough little boy. I can see so many improvements with him already. His walking is so much more stable now,he is trying to learn to volumize his sounds,as they were muffled before,so they sound much louder to him now,its so funny to watch him listening to himself. Also he was walking tonight and stopped,bent down,picked something up and stood back up,without skipping a beat. Hes never been able to do this before. He also is back to being his happy self,finally. He has been smiling and playing with us all day,you would never know he just had surgery this morning. We never did find out what it was that he had,that was making him so sick,but it seems hes on the mends now. He has lost weight though. He went from 32lbs down to 28lbs. So we have to try and fatten him up,somehow. His appetite does seem to be coming back though.
As far as the VNS surgery goes,it is scheduled for Feb 6th,providing Brady has no infection what so ever by then. They wont touch him if he has any infection,as it can get in the wires wrapped around his nerve,and be very dangerous. Once the wires are wrapped around the nerve,they will never be removed,even if we take the device out,unless for some reason brady gets infection in the wires. If Brady does get sick,we will have to treat his illness very aggressively just to be sure that no infection reaches the wires to the VNS. Removing the wires risks causing nerve damage,which is a scary thought. We are also going to have the device placed on his chest,rather than under his arm. If we pick him up under his arms,with the device placed there,we run the risk of disconnecting the wires. Brady will be spending one night in the hospital after the surgery,hopefully they will activate the device at that time. We will go back down to the doc every 2 weeks to readjust the settings until we get them where they need to be. Once we have them set,we will start taking him off of his topamax and hopefully later on,some other meds. We are very nervous,but also excited at the possibility of getting the seizures under control and getting off of some of these meds.
Anyways, I will post more updates as time goes on. |
posted by angelwings
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12:45 AM
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Friday, January 04, 2008 |
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| Well Im not sure how much I have already posted about everything that's going on here,so I will start from the beginning. We went to the ENT last week,and after 2 antibiotics and a rocephin shot,Brady still has ear infection in both ears. So he will be getting his third set of tubes on Wed. Meanwhile he has developed a terrible cough,runny nose,fever,etc. So we went to the neuro yesterday and he got really sick while we were there. His face turned bright red,fever spiked up and he was absolutely miserable. The neuro tracked down some ibuprofen to give him for the fever,but really wanted to admit him to the hospital there. It is an hour and a half from home,we had no clothes and Peyton was home with Maw maw,so we opted to bring him home and go to the pediatrician. Brady coughed so hard that he ended up throwing up the entire trip home. He was practically dry heaving. Craig got in the back seat to keep cleaning up the vomit and cleaning his runny nose. So we went straight to the ped when we got home,and they gave him another shot of rocephin and said if this didn't help to take him back today for another shot. So he stayed sick all night and all day today. The fever isnt going below 100 degrees at this point,even though hes getting motrin and tylenol every 3hrs. We went back and got the other shot,the last one he can have and got two meds,to hopefully help with the cough. The doc really thinks that the puss in his ear drums is causing all of the problems hes having,so if this doesn't help we just have to wait til Wed when he gets his tubes and gets the fluid drained out. Were all hoping that will do the trick for him. We have been to the doc 7 times in 2 weeks,Im so tired of seeing my baby boy so dang sick!! So please keep him in your prayers guys,he really needs some relief,he is so miserable. I will keep ya posted on how things are going. |
posted by angelwings
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6:19 PM
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Wednesday, January 02, 2008 |
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Well since I have been neglecting Brady's blog,I figured I should post with an update on everything that's going on here. Brady has had ear infection for more than 2 weeks now,and spent Christmas sick,uhhh. So he had two different antibiotics and had a rocephin shot,but nothing has touched the ear infection so far. And now Brady has a nasty cough,fever and runny nose,and is even more cranky than before. We think if he doesn't already have pneumonia,hes well on his way to getting it. So we went today for blood work and a chest xray to check for that,then had to go the ENT. He said Brady's ears are still full of infection,and its obvious that just antibiotics isnt going to do it. So were going Jan 9th to get our third set of tubes put in. Meanwhile we have to find out whats going on with his chest and decide what to do about that. But tomorrow we go to the neuro,they called and changed our next weeks appt to tomorrow,woohooo,not! But we will still be going to the surgeon next week for the VNS consultation,so hopefully that will be coming up soon. Its been totally crazy here lately!!! I will be so glad when all this is behind us and we get our happy little man back. But the one good thing I can say is that so far,knock on wood,we haven't seen any seizures,which totally surprises me. So keep Brady in your prayers,pray that he gets through all of this soon,and that he remains seizure free.
Anyways we didn't get in til 8pm tonight,then had to clean poop out of the van seat. Brady had a poop party on the way to the doctors visit today :( So I'm beat,I'm going to get some rest,its going to be another long night. I will post more as we find out. Thank you all so very much for your support and for your prayers,it means a lot.:) |
posted by angelwings
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9:49 PM
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