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Monday, January 14, 2008 |
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Just wanted to let everyone know that Brady is doing well since his tubes were placed in on Wed. He continues to walk,practically run everywhere and is into everything,and I do mean everything!!!! He managed to turn the hot water on in his bath a couple nights ago and scald himself,thank goodness the temp wasn't hot enough to do more than just irritate his skin for a few minutes. But we have ordered a new scald free faucet and are just waiting for it to come in so we can install it. Trying to keep Brady out of the bathroom is an impossible feat,so we just have to try and make it as safe as we can,for the times he manages to escape our watchful eyes.
Sleeping is going well these days (knock on wood). He might not sleep all night,every night,but he does go to sleep most every night,thanks to good ole seroquel,lol,of course he still has his moments. But hey a little sleep is better than none,right.
Anyways I will keep you posted on how things are going here. Keep a watch for more pictures,I'm going to post some from New Years soon. |
posted by angelwings
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3:28 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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