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Monday, August 16, 2010








posted by angelwings @ 7:03 AM
   0 comments
Warning: The stories that I am about to present are based on actual events; viewer discretion is advised. . .
This weekend was a wild one in our house. We had pictures Saturday morning and were due at a Birthday party around 2pm that day. I ended up staying home with Brady because he was very tired after pictures and needed a nap.
Anyway, that evening we had a poo-911 in which we had no wetwipes in the house, so we made a quick trip to the store to pick up some. Dad and Peyton went in the store, while I sat in the car with Brady. Naturally, Peyton suckered his dad into buying goodies while at the store.
So we get home, change the diaper, which adds that De La Poo scent to the house. Meanwhile, remember that Peyton picked up goodies at the store. . . So he decides that its time to show me what his goodies are. He lays this foil looking piece of paper on the floor and tells me to "just watch". I'm watching this paper for about 30seconds when I decide to go over and investigate. Peyton drags me back and says "no mom, its going to blow up". He was right, this piece of paper did expand and blow up, right before our eyes. After its done, Peyton then explains that its a "fart bomb"; I am just thrilled to be now adding to the De La Poo scent that already radiates around the room. So I'm thinking, well it wont be so bad, how bad can this thing smell; it was BADDDDDDDD!!! So by now, we have made our way into the kitchen and have started cooking supper. Since the previous scents are so bad, we decide to light a candle, hoping to make the smell go away more quickly. So we place the lit candle on top of the refrigerator, thinking that it would be safe there, since it was out of Brady's reach. Meanwhile, I get out a bag of bread crumbs, which I will be using in my Broccoli Casserole that I am cooking.
Since I didn't want Brady to get the bread crumbs, I placed those on top of the refrigerator as well, then I went about my cooking. In a minute or so, Craig is standing by the sink and starts saying "oh, oh, oh" I'm just looking at him wondering what is going on. I kept asking, "what, what is it, what" and he finally exclaims "fire!" Since I am cooking, I begin looking at the stove-top, at the oven, down the counter-tops, but no fire. I'm still saying "what, where, what are you talking about" when I glance upward and see the fire coming from the top of the refrigerator. Since I am to short to reach, I had to wait for Craig to get water and pour over the flames. Thank goodness it only burned my bread crumbs, a cd, and a couple of papers!
So I begin wiping the brown water from the side of the fridge, while Peyton is standing on the counter, wiping the top of the fridge. We get that mess cleaned up and I go back to cooking. Brady then pours a bag of cheese puffs in the floor, tries with all his might to stick his hands in the boiling water on the stove, and eventually grabs himself a handful of Broccoli Casserole (which has no bread crumbs, because they were burned). I ended up locking the half-door to the boys room and putting them in the room while I finished cooking.
I was exhausted by the time that I fixed plates and sat down at the table for supper, but I had to laugh. Just thinking of the chaos and entertainment that our lives bring, made me smile. "It may be a crazy life, but its my life". . .

posted by angelwings @ 6:43 AM
   3 comments
Wednesday, August 11, 2010





posted by angelwings @ 2:03 PM
   0 comments
Well Brady its been a busy week in the Fore house this week. Brady started sleeping in his room Sunday night for the first time in four years, and he is doing great! He sleeps in his bed, next to his brothers bed, and I am getting a full nights rest for the first time in years. Brady also started back to school this week and we are attempting to try full days. So far he is doing really well, but is a bit tired by the end of the day. As for seizures, (knock on wood) Brady is doing great! We started Zonegran at the first part of the year, and it appears to be working.
Things really are going well here atm. Brady is so alert these days, moreso than I have ever seen before. He is following commands, answering yes and no questions appropriately, and surprising us with new skills every day. I'm not sure what the real definition of normal is, but I must say that our lives at this point, are as close to normal as its ever going to get,lol.
On a sad note, we lost a very special Angelman mom this week. I am not sure what the cause of death is, but it was unexpected and sudden. She was a very special person who has helped so many others in her life. So please keep her daughter and family in your prayers, as this is a very difficult time for them.
Just wanted to post a quick update, as I don't do that often these days. Gotta run get the boys at school now. Will post later and hope to have pics; the boys are scheduled for Saturday if the storm holds off.

posted by angelwings @ 1:51 PM
   0 comments


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About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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