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Wednesday, August 11, 2010 |
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Well Brady its been a busy week in the Fore house this week. Brady started sleeping in his room Sunday night for the first time in four years, and he is doing great! He sleeps in his bed, next to his brothers bed, and I am getting a full nights rest for the first time in years. Brady also started back to school this week and we are attempting to try full days. So far he is doing really well, but is a bit tired by the end of the day. As for seizures, (knock on wood) Brady is doing great! We started Zonegran at the first part of the year, and it appears to be working.
Things really are going well here atm. Brady is so alert these days, moreso than I have ever seen before. He is following commands, answering yes and no questions appropriately, and surprising us with new skills every day. I'm not sure what the real definition of normal is, but I must say that our lives at this point, are as close to normal as its ever going to get,lol.
On a sad note, we lost a very special Angelman mom this week. I am not sure what the cause of death is, but it was unexpected and sudden. She was a very special person who has helped so many others in her life. So please keep her daughter and family in your prayers, as this is a very difficult time for them.
Just wanted to post a quick update, as I don't do that often these days. Gotta run get the boys at school now. Will post later and hope to have pics; the boys are scheduled for Saturday if the storm holds off. |
posted by angelwings
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1:51 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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