Angelman Syndrome, Life as an Angel

Sunday, May 09, 2010

Hey guys!!! Just wanted to post a quick update! I'm feeling so very blessed tonight! I have two of the best boys in the whole world. Peyton has been in our lives for nearly 12 years now and Brady has been in our lives for almost 8 years; time sure does fly!!!
Life has been a journey, to say the least! However, I cannot even describe how blessed I feel to still have both of my sweet Angels in my life. As many of you know, Brady has faced so many medical challenges over the past 8yrs. There have been many times that we honestly did not know if he would survive. By the grace of God, Brady did survive and has gone on to bless our lives for the past 8yrs. I am so thankful for every second that my sweet boys are with us, as there are so many parents that no longer have their children in their lives. I just could not imagine my world without either of my precious boys. So hold your precious children close and enjoy every minute with them, some people do not have that privilege.
Now that Ive got all the mushy stuff out, I will move on to more interesting updates,lol. Brady is doing great! So far, his seizures seem to be under control (knock on wood). He continues to attend school and is doing very well. I kept my baby nieces last week and Brady really behaved very well around them. He even tried to hold the babys bottle in her mouth one time. I had to tak Brady to school around 10am, so loaded him and the girls up in the car and headed that way. I got the girls out, then got Brady out. Since had a carrier in each hand, Brady was unable to hold my hand walking into school; he done so good!! He walked behind me the entire time, just like a big boy. One thing that Brady did do before I took him to school, was to sniff my lips after I had kissed the babies feet,lol lol. Brady associates feet with stink, because of his brothers foot funk,lol. He now is in the habit of touching our feet then smelling his hands, it totally cracks me up,lol.
Anyway moving on. . . were getting ready for our big Angelman Walk-A-Thon next week. Since Alabama no longer has a walk, we will be traveling to Nashville for this one. And yes, we are a bit nervous, as much of Nashville is currently flooded. We did call our hotel and the walk coordinator and it seems that everything is safe for the walk to proceed. Our good friends from Pensacola will be traveling with us, so we are super excited. Cant wait to meet all of the new families this year!!!! Dont worry, you will be sick of looking at pictures when I get back,lol.
Well, gotta go do some more laundry, lots to do before next week. Will post more later.
Happy Mother's Day to all of your super special mommys out there!!!!!!!!!!

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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