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Saturday, January 30, 2010 |
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Update
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Hey guys! Its been a while since our last update, so thought we would post a quick one. Brady is doing well. His seizures have subsided. He had a really good report from his latest EEG and doctors appt. His EEG showed that he is no longer in status, thank God. His sleeping continues to be erratic, but we are dealing. He has some good nights and some bad nights. He managed to go to school almost every day this week, so that is an improvement. Life is slowly getting back to normal, if there is such a thing. Brady has been showing much interest in signing and overall communication. He recently learned the sign for hungry, which he uses, even overuses,lol. He has been signing dog as well. He signs and then looks at his puppy, Bentley.
We are in the process of getting him the new Itouch Ipod with the proloquo2go software, so that he can communicate using the device. We are excited to see how he will do with it. Of course getting insurance to pay for anything is next to impossible, so were going to bite the bullet and do it ourselves.
I am still juggling school, Brady, and everything else in my life, but still managing to keep my 4.0 :) Brady hates when I study and does everything in his power to distract me from it. He has managed to ruin one laptop and one of my text books so far.
He has turned into quite the little monkey, his climbing skills continue to become better as time goes by. He loves to stand up in the center of the coffee tables, climb over the couch, use toys to stand on and climb over things. He keeps us on our toes and busy all the time, but were so happy to have him back.
Anyway, thats about it for now. I'm going to take a few minutes and enjoy my quiet time. Hope everyone has a great, safe, night.
One last note: please say a prayer for our little Angels that are going through seizures issues and sickness at the moment. There have been several who are currently in status, one of which they are considering putting into a coma as they did Brady. We pray that the meds work and that they do not have to go through such a terrible ordeal.
Will post more later! |
posted by angelwings
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12:05 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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