Angelman Syndrome, Life as an Angel: Update

Wednesday, December 30, 2009

Update

Well its been a little while since we updated, so thought I would do so in between coats of paint.
Brady is doing well, 100% recovered for his ordeal a few weeks ago. He has been being a little stinker, but whats new I suppose. He has been very interested in signing lately; he is now signing hungry all the time, he never gets full,lol. We are now working on the sign for sorry and stop, he is doing well, but not quite there yet.
Yesterday Brady woke me up pretending to be "Poocasa", as he was painting my bed and back with poo :( After changing the sheets we decided to head to town, on the way he to no surprise, decided to climb out of his seat belt and try to get up front with me. When he was trying to come through the center of the front seats, he started falling, so naturally I reached to catch him. When I reached to catch him, I looked off of the road for seconds, swerved over and hit a garbage can, and he fell anyway. I was worried that he had really hurt his arm because he was holding it crying. After I pulled over and got in the back seat with him, he started laughing, much to my relief. I then got out to check out the damage to my car, some scratches and big dent in the passenger door. The good thing was that Brady did stay in his seat belt for the rest of the day, it really scared him,lol.
Today has been a good day, but a busy one of course. Brady woke me up this morning, sitting on my back, riding the horsey,lol. He has become quite the early riser these days.
Later on today, Brady decided to pour a gallon of paint down the drain and paint himself, as well as taste of the paint; all while I mopped. He then decided to walk all around the bathroom leaving Brady paint prints everywhere. It has been a wild one, but I wouldn't have it any other way. So thankful to have all four family members home and well.
Were going to be working on getting insurance to pay for a new car seat for him. Meanwhile some very caring people decided to purchase a standard seat for Brady. This seat will hold up to 100lbs, so Brady is well under that mark. But it only holds up to 50" in height, and Brady is already 47". At least this seat will buy us some time while we appeal our insurance for a special seat. Now we just have to purchase Angel guards to go over the seat belt latches and we should be set, I hope.
Well gotta get back to painting while my little monkey is sleeping. Will post more later. Hope everyone has a fabulous New Year!!!

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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