Well guys, in between not sleeping, we managed to slip off to the beach today. Brady stay up all night Friday night, slept a little during the day Saturday and was up Saturday night. I stayed up all night Saturday night, went to the beach today and didn't get a nap til about 5pm. So were pretty much all tired out and all sunburned, except for Brady. We knew to load him up with sunscreen. Anyway, Brady had gotten scared on our last trip. The boats were making lots of waves, he refused to go back in the water. So we were not sure how he would do at the beach today. It didn't take him long to get over that fear, he had a blast. He loved surfing the waves, they were huge. He had sand in places we didn't know he had though. He kept dipping his honey buns and chips in the sand,ick....... But the birds really enjoyed the sandwich that Brady pinched into pieces and didn't eat. Brady is doing great! He stole a bag of m&m's last night poured them into his bowl, without spilling even one. He is so cute, walking around, holding a bowl or cup out , wanting us to add food. Everything has to go into a bowl or cup. He has also learned to dip his fries in ketchup. If we don't give him ketchup, he will hold the fries out at us, and fuss, till he gets some,lol. Anyways, my keyboard is messed up, so its hard to type, and im wore out, so gonna get off. Will post more later.
I am a happy healthy 5yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say. I make that very clear to mommy and daddy everyday!
Big Happy Tent is a homegrown non-profit organization started by Marcel Cairo and his family. Our mission is to take Angelman kids and their families camping, surround them with nature, water, music and fun, and let them soak in the wonder and joys of life.
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
The
Angelman Syndrome Foundation is a national organization of families,
caregivers and professionals who care about those with Angelman
Syndrome. It is also a member organization of the International
Angelman Syndrome Organization (IASO).
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
