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Thursday, May 14, 2009 |
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Did you guys see that Brady suprpassed his fundraising goal!!! He is now at $785, whoooo hooooo!!!! We also managed to get nearly all of our refreshments donated for our walk as well. I am so very nervous, but am also so very excited! I just have to say, that all of you have donated, ROCK!!!!!!!!
Anyway, gotta get going here, still have tons of things to get ready, before we leave. Be sure and check back Saturday night/Sunday morning, for pics! I am going to be sure and get tons of pics at the walk.
Wish us luck. Will post more later. |
posted by angelwings
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9:10 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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