Just thought I would post a quick update before we head to bed. Brady went to sleep sometime after 3am yesterday morning, got back up about 9am and was up for the day. He went to school and is now asleep! He had a great day at school, he painted, played with playdough, done his lesson, circle time with the other kinder kids, and even sat through a complete story in the library! I am just amazed at how well he is doing these days. There is no that he would have had the focus and control, 6mths ago, to sit through an entire story! The teacher was really proud of him and so are we!! Tonight, we were sitting in the yard with him, when I heard to sweetest sound coming from him. He was sitting in a chair, like a big boy, kicking his legs, and I would have swore that he was singing!!!!!!!!!!! I asked his dad did he hear the same thing I was hearing and he said he did. I honestly don't think I have ever heard a more precious sound in my life, it truly was like hearing Angels singing :) :) Anyways gotta get to bed now. Will post more later.
I am a happy healthy 5yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say. I make that very clear to mommy and daddy everyday!
Big Happy Tent is a homegrown non-profit organization started by Marcel Cairo and his family. Our mission is to take Angelman kids and their families camping, surround them with nature, water, music and fun, and let them soak in the wonder and joys of life.
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
The
Angelman Syndrome Foundation is a national organization of families,
caregivers and professionals who care about those with Angelman
Syndrome. It is also a member organization of the International
Angelman Syndrome Organization (IASO).
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
