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Sunday, January 03, 2010 |
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Well we had a fabulous New Year's Day and night!! Some of our friends from Florida, who have an Angelman child, came to stay the night with us. We all had a blast while they were here, and were sad to see them go. We went out for supper New Year's day, but had to settle on Pizza, as everything else was closed for the day, but we had a great time anyway. We came home,played on the Wii and just hung out together, while the kids played. Were looking forward to having them over again, and hopefully they can stay longer the next time :)
Anyways, Brady is doing great! He has been using signs lately. We've been going over the signs with him, and he has been picking up on them pretty quickly. So far his favorite sign is "hungry", go figure,lol.
If nothing changes, he will get to start back to school next week. I know that he is missing his friends and teachers; I think it will be good for him. He is handling his meds very well, to our surprise. We go back to the doc Jan 19th, not sure if they will do an EEG, but were a little nervous, after last time. I will keep you all posted.
Last but not least, please keep our Angels in your thoughts and prayers. We have many kiddos suffering from seizures these days. Sean, one of our babies, is in the hospital atm. He has been suffering from multiple seizures lately and has been admitted for a 24hr EEG. Please pray that the docs can get a handle on these seizures and that this family can bring their baby boy home very soon. |
posted by angelwings
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1:22 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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