Click Here to Read Brady's Story
Tuesday, March 09, 2010
Okay, just let me apologize in advance, for slacking on our posts and for this one being short. Not feeling well tonight, so gotta get to bed early.
Anyway, things are going great. Brady has been seizure free since he started his new med a couple weeks ago. So far, we have seen no negative side effects and he is almost up to full dose now. We have actually seen some improvement in his behaviors, so this med just might turn out to be a good idea.
Brady had a full week of school last week, which he hasn't had in quite some time. Tomorrow will be his third full day this week, so were hoping its another repeat of last week.
Not much else to tell here. Brady has been his typical monkey little self. He stands on and climbs everything these days. His signs are improving. He can now sign bath, cup, hungry, more, and sorry. He is also becoming more verbal lately. He has been saying mama, my mama, bubba, daddy, maw maw, and nana, a lot lately. We've been working with him on other words. It is so interesting to watch him, obviously trying to figure out how to form the words that were trying to get him to say. He stops, moves his mouth, and gets this really intense look on his face. I know that he knows exactly what he wants to say, but just cant figure out how to get it to his lips. As long as the desire is there, I know that his language skills will continue to develop and grow.
Anyway not much else happening. I'm heading off to bed now. Hope everyone has a great night!

posted by angelwings @ 11:08 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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