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Wednesday, February 17, 2010 |
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Well its been a little while, time for a quick update! Brady is doing well, other than the fact he hasn't slept in quite some time now. He woke up at 1am this past morning, took a two our nap, and has just now gone back to bed, at midnight the next morning. He has been wired, but we are seeing a lot of improvements, since the med reduction. He is down from 12 mls daily, to two mls!
Brady continues to sign, he is desperate for more signs though. If he wants something, but doesn't have a sign, he immediately signs "hungry". We have to brush up on our signs and start working harder with him. His Itouch Ipod should be in soon, were looking so forward to having it. I just hope that he will pick up on using the picture symbols and will be able to use it as his voice.
As for seizures, he is holding his own. We have seen some questionable activity, but nothing to cause alarm. We are just watching him, to see how things progress, hopefully we can have him on, only one med, very soon!
Anyway, thats about it for now. Will post more later! |
posted by angelwings
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12:13 AM
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| About Brady |
Read Brady's Story Here
I am a happy, healthy 9yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say; I make that very clear to mommy and daddy everyday!
See my complete profile
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Big Happy Tent |
Big Happy Tent is a homegrown non-profit organization started by Marcel Cairo and his family. Our mission is to take Angelman kids and their families camping, surround them with nature, water, music and fun, and let them soak in the wonder and joys of life.
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Angelman Syndrome Foundation |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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