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Wednesday, February 17, 2010 |
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Well its been a little while, time for a quick update! Brady is doing well, other than the fact he hasn't slept in quite some time now. He woke up at 1am this past morning, took a two our nap, and has just now gone back to bed, at midnight the next morning. He has been wired, but we are seeing a lot of improvements, since the med reduction. He is down from 12 mls daily, to two mls!
Brady continues to sign, he is desperate for more signs though. If he wants something, but doesn't have a sign, he immediately signs "hungry". We have to brush up on our signs and start working harder with him. His Itouch Ipod should be in soon, were looking so forward to having it. I just hope that he will pick up on using the picture symbols and will be able to use it as his voice.
As for seizures, he is holding his own. We have seen some questionable activity, but nothing to cause alarm. We are just watching him, to see how things progress, hopefully we can have him on, only one med, very soon!
Anyway, thats about it for now. Will post more later! |
posted by angelwings
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12:13 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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