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Thursday, February 25, 2010 |
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Wish I had better news to report :( Tonight is our second night of seizures with our little guy. We have been weaning Brady off of pheno, that he came home from the hospital on. We knew that this med was not going to be a longterm med for Brady, since his body does not tolerate it well at all. We had hoped to wean him off and have him remain on only one med, but its becoming obvious that this is not a possibility. Last nights seizure started while he was in the bed with his dad, it didnt last long, or we think it didnt anyway (dad was sleeping and woke up to the seizure). Last night the seizure stopped on its own. Tonight I woke up to find Brady seizing, again,cant be sure how long he had been seizing. I used his magnet, used diastat and used the magnet again, but it took about ten minutes for the seizure to stop. It was what we call a "bad boy", a tonic clonic. Brady is very out of it now, not very responsive at all. Please pray that we can find something to work for him, and that he can get past this setback, very soon.
Will post more later. |
posted by angelwings
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3:38 AM
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I can so empathize with what you are going through. There is nothing worse than having to watch a precious child suffer...
Lindsey Petersen
http://5kidswdisabilities.wordpress.com
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| About Brady |
Read Brady's Story Here
I am a happy, healthy 9yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say; I make that very clear to mommy and daddy everyday!
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I can so empathize with what you are going through. There is nothing worse than having to watch a precious child suffer...
Lindsey Petersen
http://5kidswdisabilities.wordpress.com