Click Here to Read Brady's Story
Tuesday, July 20, 2010
Well its been a while folks! Sorry for all the delays, but schoolwork has me bogged down these days. Things are great! Brady is doing very well, no seizures since the first part of the year (knock on wood). We have all enjoyed our summer, but it was to short. Now its time for back to school clothes and supply shopping. I think that the change of scenery will do Brady a lot of good. I see him becoming more bored and more frustrated, the longer that he is home with me. He no longer seems to be enjoying the little peoples toys. We have decided that we will purchase older toys for Christmas, but have no idea what those might be as of yet. So if you have any ideas for an 8yr old, send them to me :)
Anyway, we had some medical issues with a family member and ended up keeping a 3yr old little boy for about two weeks. As you can imagine, it was a wild ride with him, Brady, and Peyton. The house was rarely quiet, nor still. The kids were all still moving when they slept,lol. Brady done pretty good with the little guy, but he was still a bit rough when he tried to play. They both were very jealous of me and fought over who would sit in my lap,lol. Anyway, things are better now and we are getting back to normal.
We went to the neuro and the dentist last week and both visits went very well. We do not have to return to either for six months; no cavities, no seizures :)
Well thats about it for me. Gotta get some much needed rest. Will try to post more, sooner. GN friends!

posted by angelwings @ 9:35 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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