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Saturday, January 31, 2009 |
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Well, its been a while since our last update, so thought I would post a quick one tonight. Brady is doing well, but we've all been sick here with Strep Throat. Brady has handled it better than me and his brother, thank goodness. Other than a slight cough and occasional sneeze, hes doing great. His sleeping has been all over the place this past week,and he hasn't made it to school all week. He has been very active, almost manic. He did manage to watch part of a movie, Horton Here's A Who. He stood in front of the tv, and danced around, even putting his face up to the tv a few times,lol. It was adorable. Brady hasn't been out of the house all week, I think hes getting really bored being at home. Hopefully next week he can venture back out into the land of the living :)
We done some renovations here in what used to be the therapy room, making it more suitable for all of us. We put up a new quarter wall, putting all of Brady's toys on one side, and adding all padding to the floor, while the other side actually looks like an adults room. Brady loves the new room/rooms. He spends alot of time on his side of the wall, playing with he toys, occasionally throwing some toys over the top. His daddy got a new tv. But we cant mount it on the wall, until the bracket comes in. Brady has shown lots of interest in the new tv, not a good thing. Hopefully it can survive until we can get it hung up out of his reach. The big screen that was here, has now retired to the living room, with lots of war injuries from Brady,lol. The old tv really has been a good one, when Brady pours something in it, we just unplug it, and it starts back working in a couple of days, but I'm sure its days left were numbered.
Anyways thats about it for now. Will post more later. |
posted by angelwings
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11:43 PM
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Tuesday, January 20, 2009 |
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Hey guys! Brady is doing great, had a great day at school today. He is using his communication device and pictures with intent. He was hungry and very motivated to let them know what it was he wanted to eat. He was trying to tell them that he wanted something else, but they couldn't figure it out. I think his teacher said that he refused to use his device. Apparently they forgot to put the picture of his cup, on his communication device. So he searched through the other pictures until he found the picture of his cup and was quick to let them know he was thirsty :)
We went to the grocery store and he let me know that he wanted pretzels, his new favorite food. When we got home, he took them out of the bag and started patting them, just like he does his device and pictures, he didn't even try to open them! He has started eating like Mr. Piggy lately. He is hungry and eats all the time. He will eat most anything these days, even some meats. I can tell that he is gaining weight, we cant even see his ribs anymore.
So far we haven't seen any other seizure activity and he seems to be tolerating the increase of depakote. I'm so glad to say that it seems he hasn't lost any skills, due to the recent seizure.
Brady learned to run today. We were late for school, so I was hurrying him down the hallway, so we could leave. I told him "come on, lets run", and he did!! He looks so cute running.
And for my all time brag of the day............ Brady helped me carry the groceries to the kitchen tonight!!!! I handed him a light bag and told him to come with me, and carry the bag to the kitchen and he did it!!!!!!!!! He looked so cute walking down the hallway holding that bag out in front of him :) He only managed to carry one bag, but hey, thats a start!!!!
He has been doing so many typical things lately, I see his Independence blossoming these days, I love it!! He continues to amaze me everyday.
Anyways thats about it for me, just thought I would post a quick update. |
posted by angelwings
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10:09 PM
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Friday, January 16, 2009 |
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Just wanted to let you know that Brady is doing well. He seems to have gotten past the worst part of this whole seizure ordeal. He was up and going by lunch yesterday, his seizure was at 4am. He seems to be nearly back to himself by today. We don't know what caused the latest seizure, but were just glad its over and hes ok. We have increased one of his meds and will having the VNS turned up next week, so hopefully that will do the trick.
As for the seizure, I know you guys are all probably wondering when and how it happened. This week I have been feeling uneasy, not anything was different, but I just didn't feel right. I kept him out of school on Tuesday, just thinking that a seizure might be coming. By Wed I had convinced myself that I must be loosing my mind. I took him to school, ut took him to the doctor afterward,to have him checked out, just in case. They couldn't find anything, which isn't surprising since detecting a seizure that hadn't happened yet, would be nearly impossible. I told his teacher before we left that day, that I just had a feeling that Brady was going to have a seizure.
Anyway we came home that night, nothing out of the ordinary. Brady played with his toys all night and really didn't act any different that usual. By 4am he fell asleep on the couch, so I carried him to my bed. It wasn't long after I put him in our bed that this feeling of OMG came over me. I started feeling around in the dark, to see if Brady was jerking, but he wasn't. I still felt that something wasn't right, and reached over to feel of his face, but his head was turned all the way to one side, was stiff and I couldn't move it at all. I told my husband then that I thought Brady was seizing, to turn the light on. His head and eyes were turned to the left side, which isn't typical for him. They usually turn to the right side. His hand was also jerking a little bit, but nothing like with his seizures in the past. We started using the VNS magnet on him and swiped him 5 times for the next 5 minutes but the seizure didn't stop, it only changed. His eyes came to the front, but his pupils were so dilated that you couldn't even see the blue in his eyes. He was flailing around like he was going to get up and looked as if he were scared to death. We waited another 4 to 5 minutes, trying to give the VNS time to work, I think we might have even swiped him once more. It kind of worried me because as I looked at his chest, it started developing this red rash under the skin, and as I watched it spread from the top part of his chest, nearly down to his stomach. So we decided that we had to give the diastat, but it took two of us to hold him down, because he was fighting us with all his might. It was like he was there, but not really there. He had no idea who we were, or what we were doing to him, let alone what was going on. So anyway we did give the diastat and it was a matter of seconds before it started working. He slept until about lunch that day, but was good to after that.
So were hanging in here, just glad that things happened the way they did and that our little guy is alive and well.
I will keep you guys posted on how things go here. Were just believing its going to be an uneventful rest of the year :) |
posted by angelwings
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3:08 PM
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Thursday, January 15, 2009 |
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| Spoke to soon I guess! Brady had a nasty seizure about 4am this morning. Thank God I was awake and noticed a strange movement in the dark. We used the VNS magnet 5 times before giving diastat, the seizure finally stopped after about 10 minutes. Brady has been throwing up on and off for the last couple of hours, probably from using the magnet. I will be sitting up to watch him, until his dad can get home and relieve me to get some sleep. So say a prayer for our little guy, hes had a rough morning already. |
posted by angelwings
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7:07 AM
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Wednesday, January 14, 2009 |
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Well its been a while since I last posted, so thought I would play catch up tonight. Things are going well here, Brady is thriving these days. He is going to school 4 days a week, without mommy being there. He doesn't even care that I leave him there, most times hes to busy to even wave bye to me. The teachers say he is doing fantastic! He is using a 32 picture communication board at school and doing amazingly well with it. We are all so proud of our big boy! He has been going in with the regular Kinder class, they all love him and he loves them. The teacher said he sat for 5 minutes in a regular chair today,without even having to be prompted to do so. Brady seems to be surpassing everything that we expected him to be doing this year, the sky is the limit! His behavior seems to be really improving, I think school has a lot to do with this.
He has been acting a bit strange the last few days, so I took him to the doc today. He has been picking at his ear, so were thinking he might be getting an infection. The doc couldn't see anything because of the excessive wax, so he put some drops in to dissolve it and were going to start using antibiotic drops, to be on the safe side.
Anyways thats about it for now. I will post more later. |
posted by angelwings
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11:36 PM
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Sunday, January 04, 2009 |
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Well its been a while since I posted, so thought I would play catch up tonight.
Brady is doing well, hes been such a good boy the last few days. He went to the grocery store with me Friday, and behaved so well. He helped me push the cart around the entire store and didn't take anything off the shelves, or out of the cart. He made several new friends while he helped me with the cart, hes such a monkey :) I let him pick out what kind of chips he wanted, of course he chose his favorite, Ranch Doritos. Then I let him choose his snack cakes, and he of course chose honey buns. Oh and he did make it known that he wanted some bananas :) Its so fun watching him make choices for himself, he is a kid that knows what he wants.
He has been playing with all his new Christmas toys, instead of sitting on me all the time, I am so thankful and hope he doesn't get tired of the new toys anytime soon.
Brady's Saint Bernard has been expecting pups any day now. Brady has been so cute about it. I had her in a kiddy pool in the room with us. Brady would wake up last night, and lean off the couch, look in the pool at her and I would tell him "no pups yet", then he would lay back down and do the same thing again in a little while. He knew exactly what was going on and was anxiously awaiting the pups arrival. She had 9beautiful Saint pups today, Brady has been thrilled, and very curious about them. He even tried to climb in with them a few times, but he has been very good for the most part.
Brady did manage to scare me to death last night. His brother left the outside door unlocked, so Brady escaped while I was in the kitchen getting supper started. I hadn't heard or seen him in about 5 minutes, so decided to go check on him and ended up finding him outside in the middle of a thunderstorm, eating the dogs food!!!!!
Brady has been doing well otherwise. We decided to velcro his plate to the table, so that he could sit at the table like a big boy when we all eat supper. I have been fixing the same things on his plate, as is on ours, and hes been eating it, although he does still have some trouble using his fork! He has tried a couple of times to grab the plate up, but gave up pretty quickly once he realised it was stuck :)
Anyways, thats about it for now. I promise I will start posting more regularly,and I promise to get the Christmas photos uploaded very soon, Ive been a bit lazy lately,lol. |
posted by angelwings
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10:34 PM
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