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Tuesday, January 20, 2009 |
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Hey guys! Brady is doing great, had a great day at school today. He is using his communication device and pictures with intent. He was hungry and very motivated to let them know what it was he wanted to eat. He was trying to tell them that he wanted something else, but they couldn't figure it out. I think his teacher said that he refused to use his device. Apparently they forgot to put the picture of his cup, on his communication device. So he searched through the other pictures until he found the picture of his cup and was quick to let them know he was thirsty :)
We went to the grocery store and he let me know that he wanted pretzels, his new favorite food. When we got home, he took them out of the bag and started patting them, just like he does his device and pictures, he didn't even try to open them! He has started eating like Mr. Piggy lately. He is hungry and eats all the time. He will eat most anything these days, even some meats. I can tell that he is gaining weight, we cant even see his ribs anymore.
So far we haven't seen any other seizure activity and he seems to be tolerating the increase of depakote. I'm so glad to say that it seems he hasn't lost any skills, due to the recent seizure.
Brady learned to run today. We were late for school, so I was hurrying him down the hallway, so we could leave. I told him "come on, lets run", and he did!! He looks so cute running.
And for my all time brag of the day............ Brady helped me carry the groceries to the kitchen tonight!!!! I handed him a light bag and told him to come with me, and carry the bag to the kitchen and he did it!!!!!!!!! He looked so cute walking down the hallway holding that bag out in front of him :) He only managed to carry one bag, but hey, thats a start!!!!
He has been doing so many typical things lately, I see his Independence blossoming these days, I love it!! He continues to amaze me everyday.
Anyways thats about it for me, just thought I would post a quick update. |
posted by angelwings
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10:09 PM
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| About Brady |
Read Brady's Story Here
I am a happy, healthy 9yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say; I make that very clear to mommy and daddy everyday!
See my complete profile
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Big Happy Tent |
Big Happy Tent is a homegrown non-profit organization started by Marcel Cairo and his family. Our mission is to take Angelman kids and their families camping, surround them with nature, water, music and fun, and let them soak in the wonder and joys of life.
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Interactive Seizure Diary |
This
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Angelman Syndrome Foundation |
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The AS Forum was created in April
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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