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Tuesday, January 20, 2009 |
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Hey guys! Brady is doing great, had a great day at school today. He is using his communication device and pictures with intent. He was hungry and very motivated to let them know what it was he wanted to eat. He was trying to tell them that he wanted something else, but they couldn't figure it out. I think his teacher said that he refused to use his device. Apparently they forgot to put the picture of his cup, on his communication device. So he searched through the other pictures until he found the picture of his cup and was quick to let them know he was thirsty :)
We went to the grocery store and he let me know that he wanted pretzels, his new favorite food. When we got home, he took them out of the bag and started patting them, just like he does his device and pictures, he didn't even try to open them! He has started eating like Mr. Piggy lately. He is hungry and eats all the time. He will eat most anything these days, even some meats. I can tell that he is gaining weight, we cant even see his ribs anymore.
So far we haven't seen any other seizure activity and he seems to be tolerating the increase of depakote. I'm so glad to say that it seems he hasn't lost any skills, due to the recent seizure.
Brady learned to run today. We were late for school, so I was hurrying him down the hallway, so we could leave. I told him "come on, lets run", and he did!! He looks so cute running.
And for my all time brag of the day............ Brady helped me carry the groceries to the kitchen tonight!!!! I handed him a light bag and told him to come with me, and carry the bag to the kitchen and he did it!!!!!!!!! He looked so cute walking down the hallway holding that bag out in front of him :) He only managed to carry one bag, but hey, thats a start!!!!
He has been doing so many typical things lately, I see his Independence blossoming these days, I love it!! He continues to amaze me everyday.
Anyways thats about it for me, just thought I would post a quick update. |
posted by angelwings
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10:09 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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