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Thursday, December 11, 2008 |
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Sorry for the delay in posts here these days. My hand and arm are still giving me fits and we still don't know whats wrong, so just bear with me. Brady is doing great. He has been sleeping more lately than he had been in a long time. We went to the Neuro yesterday and got a really good report. The doctor couldn't believe how well Brady was walking now, he was really impressed. We made the decision to turn up the VNS and turn up the strength of the magnet. The doc said that the VNS settings were still very low and the magnet setting also very low. He was not surprised that the magnet didn't stop the seizure back in October. So with the VNS turned up, were going to pick back up decreasing the keppra, until its totally gone. And with the magnet turned up, hopefully it will stop any seizures that he might have in the future. We have an Ortho appt there next week, so were going to swing back by and get the device turned up at that time. Overall, the trip was a good one. Brady was super sweet the entire time we were there, he was a bit manic, but at least it was happy manic. He waved at and smacked his lips at everyone that we passed, he made quite a few new friends. He tried his best to escape from the room we were in at the docs office, but his dad gave him a run for his money,lol. We waited nearly an hour in that little room, I thought Brady was going to tear it slam apart! But we made it out without incident, so it all worked out.
Peyton had a doctors appt last week, Brady has 2 this week and I have had one this week. Peyton and Brady both have appts next week as well and I'm still waiting on the ortho doc to call me back about my hand. So, its been a crazy, busy month here. I'm just hoping things settle down a bit after this month.
Anyways I will let ya know how the upcoming appts go. Hope everyone has a restful night! |
posted by angelwings
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9:09 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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