|
 |
|
Friday, November 21, 2008 |
|
Well, since Brady is no where near sleeping, thought I would post a quick update. Things are going good here, Brady seems be feeling especially good/wild tonight. He has been eating like a little piggy lately, so that's a good thing. He seems to be gaining a little weight, so hopefully no more mooning sessions from him anytime soon. We just got through cleaning up after a big party that he threw for me tonight :( I got him out of the bath, which he never wants to do, and when we were coming down the hallway, I was fussing at him. He very plainly told me "I don't care!" I swear this kid never ceases to amaze me.
Were getting ready for his brothers Birthday, going to have a little party tomorrow night, so Brady will really enjoy getting to climb on everyone. I managed to trim his hair tonight, so he no longer looks like a little girl :)
Anyways that's about it for me, have tons to do around here, so I will post more tomorrow, and hopefully some pictures. |
posted by angelwings
@
11:51 PM
  |
|
|
|
|
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
Check it out, I lost my first tooth!!!!
Brady has officially joined the snaggle tooth club...
Well guys, not much to post, but dad is working an...
Well guys, its been a while since I posted, so tho...
Well guys, for those of you who don't already know...
Did you guys think we had abandoned you forever,lo...
Well things have settled down a bit here. My TV st...
Well its been one of those days here! Brady didn't...
As you can see, we had a blast camping this weeken...
Camping at Big Lagoon
|
| Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |
