Click Here to Read Brady's Story
Friday, October 17, 2008
Well things have settled down a bit here. My TV started back working, yet again! Of course my toilet picks and chooses when it will flush, and I still have to use a sock as a stopper for my bathtub,lol. And yes Laurie, he did sleep that night :) Thanks so much for the good thoughts and prayers!! Brady is doing well, he spent a night with Maw Maw last night. She ate supper with us and we walked her home, but Brady wanted to stay. He pitched a tantrum the whole way home and for an our after we were home. Once he calmed down we decided to let him go back for the night, he was very happy. He done good though, he slept all night for her. When I got him at 6am this morning he led me to the bedroom, climbed up in the bed and motioned for me to lay down. He went back to sleep and slept for several hours. He is getting so good at guiding us around where he wants us to go, were like a bunch of puppies,lol. Anyways thats about it for now. I will post more later.

posted by angelwings @ 9:26 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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