Angelman Syndrome, Life as an Angel

Wednesday, September 24, 2008

Well its been a while since I posted so thought I would attempt it this morning. We had a good week last week, Brady had a blast at school and hes learning so much. They are working really hard with picture cards right now, hes catching on quickly. We went camping this past weekend and had so much fun. He made lots of new friends, and had to visit each campsite to say hello,lol. We took his trike, but didn't get far with it. He refuses to keep his foot on the peddles. We ended up tying his feet on the peddles with a pair of socks. It worked really well for the most part, but we still couldn't get him to peddle. We let him roll down the side walk, with his Nana at the bottom to catch him. He had a bit of an accident one time, but he got up laughing, so alls well that ends well :) Were gonna keep working on the trike, I really think he will be able to get it sooner or later. Anyways he now has two skinned knees and lots of bug bites. He had on spray, but I guess hes so darn sweet the bugs just couldn't resist. I swear he looks a site right now. He already had a skinned knee before the trike accident, he fell under the carport earlier in the week. Well he was pushing a chair around the room last night and fell again, scraping his back and shoulder. As if that wasn't enough, about an hour ago I went to put some more clothes in the washer and came back to find him layed out on the floor, he fell off a little table that we brought in to play games on. So he now has more scrapes on his shoulder and a knot on his head! He doesn't seem bothered though, hes happy and giggly, well actually giggly manic! Hes as manic as I have ever seen him, I'm actually a little concerned. He cant seem to give me enough kisses, hes trying to bite, pulling my hair, rubbing my head and climbing all over me. I'm afraid to give his sleeping pill since he fell earlier. So I guess we will just have to do without it and hunker down for the night. I hope he goes to sleep soon or he wont be any good for school tomorrow and neither will I.
Anyways back on a good note, other than being manic right now, he is doing well. So far we aren't seeing any seizures. His teachers said they thought they seen some strange movements at school last week, but couldn't be sure and we haven't seen anything since then, so who knows. He is trying so hard to communicate these days. I can just see those little wheels turning, just wish I could get in that little head of his.
Well that's about it for now. I better go since Brady is now sitting on the table again. I'm gonna have to move this thing out of here. Will post more later. Wish us luck at school tomorrow.

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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