Angelman Syndrome, Life as an Angel

Friday, September 05, 2008

Hey Guys,
Sorry for slacking on our posts lately, its been crazy here. Brady has decided that sleeping is no longer on his list of important things to do. He has also picked up a nasty habit of hitting himself in the head, as if something is bothering him. This all started after he started having trouble with his ears,so I think that its going to be linked to that. We go back to the ENT on Monday, so hopefully he can give us some much needed insight into what is going on.
Brady went to school yesterday, after only 4 or 5 hrs of sleep that morning. He was really tired, and of course I was even more tired! He done well though! He showed me how he has been learning to match objects with pictures :) His teachers are so wonderful with him! I know hes going to learn in leaps and bounds before the end of the school year!
Anyways, we came home and he refused to go to sleep. We stayed up til after 7:30 am (the next day)! I managed to finally get him to sleep, but he kept waking up, fussing,so I of course got little to no sleep. Here we sit at 12:30 am and still hes going strong! Brady has been totally manic lately. I will clean up this room and in 5 minutes he has it destroyed again. He thinks that all the toys have to be out of the toy box, off the shelves and in the floor. He thinks that if there is a book or he can get his hands on wet wipes, he needs to shred them in a million pieces. He thinks if he can knock his cup around hard enough and knock the non spill piece out of the top, then he should pour the entire cup in the floor! I cant seem to put things high enough for him not to reach them lately, hes into EVERYTHING!!!!!!!!! But at least he has learned a new skill, how to use spray cans, so it smells grapey fresh in this room :) Oh and another new skill he has learned, is how to take his tray off his high chair, not sure I'm proud of this new found skill.......
Ohhhhhhhh, I cant wait til this weekend, my hubby is going to have so much fun with him, while I go to sleep :) I told I'm tonight he better not be making any plans, hes on hurricane Brady duty this weekend!
Well I guess I better be going. My tv is flashing auto channel search and has a scratchy screen, all thanks to Mr. Poopy Pants over here! Gotta see if I can fix that and once again clean up the path of destruction!
I will keep ya posted on the sleeping thing, say a HUGE, HONKIN, PRAYER for us :)

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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