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Wednesday, August 20, 2008 |
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Just a quick update. Brady went back to the ENT today,his ear is looking better. The bleeding has stopped,but the granulous tissue is still there,so were not out of the woods yet. We will continue the drops and go back in one week to see how things are progressing. I will keep you guys posted on that.
As for the med weaning, its going great! We have him down from 6 topamax to 1 and he will be totally off in a week. He is progressing in leaps and bounds. He is jabbering up a storm these days,even saying some new words! His communication skills are wonderful these days. It is the sweetest sound ever,hearing words coming from that little mouth. So far,no seizures,which is amazing. It finally feels like were getting our lives back! He goes back to school tomorrow,which I know he is looking so forward to. His teacher and all the staff at school have been wonderful. Even though they have so many other kids there, they focus on Brady and his needs. It is going to be a great year, were really excited!
On a sad note,we have several Angels having seizures,in the hospital or having other medical issues at this time. We have an Angel sibling in the hospital with Leigh's Disease,which is progressive. So please keep these sweet babies and their families in your thoughts and prayers.
Anyways,gotta get some sleep for our big day tomorrow. Will post more later. |
posted by angelwings
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1:39 AM
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That has to be the sweetest sound ever; to hear words coming from that little guy!!!! I am so happy for you all. How AWESOME that he is doing so well with the VNS, praise God, how awesome!!!!!!
I don't comment usually, but I just love to read your updates on Brady Stephanie, you have the sweetest spirit and I just love your outlook on everything. Brady is a lucky boy and you are a blesesd mama! I love reading of Brady's adventures!
Hugs,
Yvonne and Joshua
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Hey guys! I'm sure many of you have heard about th...
Hey guys, have you heard that new song, "Time of M...
Okay guys,its nearly 3am here,and I'm dead tired,s...
Brady starts school!
Umbrellas are useless with an Angel!!!! Yeah,its b...
Just remembered that I hadn't posted an update on ...
Well tomorrow is the big day. We take Brady at 8am...
Well Brady's ear has been bleeding on and off sinc...
One wasnt enough :)
Well,we got a break last night. Both boys spent th...
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Interactive Seizure Diary |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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That has to be the sweetest sound ever; to hear words coming from that little guy!!!! I am so happy for you all. How AWESOME that he is doing so well with the VNS, praise God, how awesome!!!!!!
I don't comment usually, but I just love to read your updates on Brady Stephanie, you have the sweetest spirit and I just love your outlook on everything. Brady is a lucky boy and you are a blesesd mama! I love reading of Brady's adventures!
Hugs,
Yvonne and Joshua