Click Here to Read Brady's Story
Thursday, August 21, 2008

posted by angelwings @ 3:07 PM
   0 comments
0 Comments:
 
Home        Post        Edit        Post a Comment
 


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home      Post        Edit

Just a quick update. Brady went back to the ENT to...
  Hey guys! I'm sure many of you have heard about th...
  Hey guys, have you heard that new song, "Time of M...
  Okay guys,its nearly 3am here,and I'm dead tired,s...
  Brady starts school!
  Umbrellas are useless with an Angel!!!! Yeah,its b...
  Just remembered that I hadn't posted an update on ...
  Well tomorrow is the big day. We take Brady at 8am...
  Well Brady's ear has been bleeding on and off sinc...
  One wasnt enough :)
 
Archives
Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy