Angelman Syndrome, Life as an Angel

Saturday, November 15, 2008

Well guys, its been a while since I posted, so thought I would take a little time to do that tonight. Brady is doing well, no more seizures so far. He is actually sleeping tonight, with no sleeping pill! School is going well, he still enjoys it. We had the Fall Festival Tuesday night, he had a blast socializing with everyone. I swear Brady is turning into more of a monkey every day, he keeps me laughing! He has really gotten into this waving thing. He waves to say hello and to say goodbye. But if he wants to go, he will start waving and lead me to the door. He will also take us by the hand and start waving when he wants us to go somewhere with him. He is getting so good at communicating what it is he wants.
We finally got his hot tub cleaned out and moved it outside, under the carport. Tonight is the first night this week that he hasn't been in it, but it wasn't because he didn't want to be. He stood at the door fussing, and would grab my hand, wave bye and take me to the door. When I would tell him that he couldn't get in the hot tub, he would start fussing at me.
He is still into the sniffing thing, he sniffs of everything,lol! He will pick up clean socks out of the basket and sniff them, when I give him food, he sniffs it, and he especially loves to sniff my feet,lol.
Brady is getting started with Christmas already! I have been buying and wrapping presents all along, well he got into them. He has already managed to open two of his presents. Its funny because he hasn't opened any of the other ones, just his.
I will just give you guys a quick run down of some things Brady has been doing lately. Brady's walking has strangely improved since his seizure, I cant really explain that one. He is learning to recognize his name, trying his best to talk to us, he makes all kinds of new sounds. He will grab my face and make me look straight at him, while he tells me something, its so darn cute! He is still very jealous of all of us. He doesn't want Bubba sitting beside me. If Peyton comes over and sits with me, Brady will run over there and pester Peyton until he finally gets up and moves away from us. If I'm sitting next to Brady's dad, Brady does not want him touching me at all. If his dad and I are holding hands, Brady will do everything he can to get our hands apart. Brady has learned to go out to the car, open the door and climb in all by himself, hes such a big boy! He has learned to change the channels with the remote, he loves the movie The Mask :) Brady's eating has really improved, I think hes actually gaining some weight, it looks really good on him.
Anyways, thats about it for me. I'm heading off to bed now. I will post more later.

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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